I was diagnosed with Thyroid cancer 10 years ago. At that time the gland plus some lymph nodes in the neck were removed and I successfully underwent radioactive iodine ablation. I had a neck scan last week. The results are in and I have cancer again in the thyroid bed and it seems to have spread to my lymph nodes in the neck, stage 3. I mentioned that my neck clicks and will now have a CT scan to check my bones. I’m now paranoid about where this may have gone. I thought after 10 yrs free, that was it and this has just shocked me.
Has anyone been in this position with thyroid cancer returning in the thyroid bed or elsewhere? I’m not sure what to expect or think right now. How controllable is this?
Sorry to hear of your problems Glorysun, going through a recurrence myself so know a bit how you feel. Can't answer your questions though I'm afraid, there is actually a group specifically for thyroid cancer here, maybe you'll get more help if you join there. Wish you all the best though.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Good evening Glorysun, sorry to hear that the cancer has returned, you are right in believing that after ten years all would be good but unfortunately you can never take your eye off it. I had neck clicks before my surgery and during recovery but it was nothing sinister so hopefully, you are the same. I have not had any dealings with the thyroid as my cancers were else were in the head and neck but I had quite a few lymph nodes removed during my first operation. In the end, I had three operations and have been cancer-free since 2010 with no issues to report, I'm fairly sure they will be able to control it or give it their best shot. Wishing you all the best for the CT scan their plan of attack once the results are in, please re-post if you need further help or advice, take care.
Chris x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007