So dad's been alot better these recent weeks, his recovery is going really well and I would like to thank everything be here so so much for the support you have offered me, I think this online community has been one of the most important things that have helped me get this far and hopefully (touch wood) through the worst if this process. I'm thinking about setting up fundraising for cancer soon, once dad's on the mend and we get the all clear, fundraising has been something dad was talking about from the beginning of treatment he was planning to give something back even before he knew the outcome, he's so grateful to his doctors and this process has shown a softer side to him, I've been thinking about doing some paintings to decorate the chemotherapy waiting room, its very nervous experience to sit in that room for the first time and if anyone has any ideas about the things you would like to see artwork wise please make suggestions, these paintings are for this community and for anyone who has to go through this, I want to do something positive with my experience.
Good evening Acornette, I thought last weeks post from you about using the PEG was lovely so to see your dad and read the positive comments makes it even better, I have been on the online community since 2009 and this has got to be one of the most inspiring and loving stories, the way you, as a family have dealt with it so far is brilliant well done to each one of you and long may it continue. If I could paint it would have to be one with boats or ships in, maybe in a harbour. The reason for this is because it was my job building and repairing boats, where I got a lot of satisfaction from seeing a boat or ship back in the water. I'm positive the consultants act the same with us patients when they do the same. I also like the woodland forests with the different colours and seasons plus wildlife. I'm sure you will get plenty of suggestions. Wishing you, your dad and the family all the best. Big hugs.
Chris x
Hi, Acornette, Such good news to hear your Dad is so much better and to see him also, you have done a great job looking after your Dad, I'm sure he is very proud to have such a lovely caring daughter.
The fundraising is a really good idea, the paintings I'm sure will be appreciated very much.
All the best to you your Dad and family, keep up the good work.
Regards Ray.
Morning Acornette
What a lovely message that is and it’s great to see a picture of your dad. I always love to see the real person.
The PEG has been a lifesaver for us. Ken started using it in week 3 or 4 and is still using it now 7 weeks post treatment.
Like you, I want to give something back, just don’t know what yet. Think I’ll probably stick around on here as I can dip in and out and try to help others with our experiences of breast and tonsil cancer.
As for the art work.....anything with a feel good factor.....beaches, countryside, sunshine and flowers
Sharon xx
Hubby - Left tonsil squamous cell carcinoma P16 positive with neck nodes T1N1M0 - 30 fractions of radiotherapy and 6 weeks of chemotherapy, Cisplatin in December / January 2019/20
Me - Invasive lobular breast cancer - Grade 2, Stage 2 - mastectomy October 2019 - 15 fractions of radiotherapy December / January 2019/20
Brill news ,yes there’s light at the end if the tunnel and your dad certainly looks to be in the up. So pleased for you and your sister. I did a charity bike ride for my oncologists charity at Leeds cancer unit I raised just Over £ 1150 , do what you feel comfortable with.
keep in touch Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thinking about paintings , beaches ,big sky’s ,the sea anything coastal .or woodland scene where trees go on for infinity if that makes sense .cancer stopped me painting keep saying I must get some inspiration,maybe you’ve kick started me .Will let you know H xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
I can only echo what Chris has said above; your journey has been a tough one Acornette but it, and your lovely post here is a testament to what this place can do.
I'll let you into a secret, us "community champions" (though there are so many that do as much but don't have the "badge") have a private group where we converse at at a highly intellectual level; well sort of....a bit....or not at all mostly . We have a thread in there called, "The Good, the Positive and the Hopeful" where champs from all corners of the site link inspiring threads and stories, and this one went in there today at chris2012's suggestion so you've transcended our little H&N corner and gone "Macmillan wide".
Paintings I can't help you with I'm afraid, I can't draw a circle but I do like a bit of photography; this is one of my favourites from the Greek island where I first noticed my lump.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Thank you so much everyone for all the lovely replies, from the responses alot of people would like to see landscapes of the sea and stuff, which I think is really calming thank you for the suggestions. I hope in the future I can help anyone be who goes through this experience, I've learned alot mainly how strong I can be, I thought I knew my limits before this but I've learned if it's important enough than I can cope with alot more than I believed I could. We're not out of the woods yet but whatever the outcome I know that we've all done our best as a family, it's made the little things in our family alot more special and taught us to be grateful for what we have. I've been on a rollercoaster emotionally but I feel like slowly I'm starting to settle a bit now, dad ate his first food today nearly two weeks after treatment he says he's going to eat the entire kebab shop when he gets his taste buds back, again thank you so much for the support.
Great news. I finished 7 weeks yesterday & hope to join him in the kebab shop or burger joint!! Used to limit myself!!
Onwards & upwards.
Tina x
Let us know and will join you. Burgers n kebabs are deffo a step too far for me. But a nice rare rib eye bring it on.
Good luck. Take next few weeks steady please
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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