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AsYAron amHel I am new here.I was diagnosed may2022 with right temporal Glioblastoma.successfully respected and followed by Chemo radio therapy.now it has regrown and ave on meChemo is not stopping the regrowth.I have been offered radio therapy but the...
my Glioblastoma has regrown close to the brain stem.my Oncologist advises against irradiation due to the likely damage to healthy brain tissue especially the brain stem. Lomustine temozolomide carboplatin and etopiside have all failed to halt regrowth...
Hi everyone. My mum was diagnosed over 2 years ago now and was coping really well. However the last 2 months has seen her decline quite rapidly. Sue is now completely her bound, sleeping the majority of the time, not wanting to eat so only having a few...
After 5 years of struggling to deal with the loss of my dear wife to glioblastoma I have found this forum and hope to find answers to so many questions that remained unanswered in my search for closure. If my journey can also be of help to others...
It was two years ago today when my husband told me to sit down and said "I need to talk to you." From that point, the world went into freefall as the initial suspicion of a mass on his brain became confirmation of a primary tumour to confirmation that...
Hello, I lost my husband to GBM last year. I feel all your pain and I have the utmost respect and empathy for you all. I have been hiking for the last 12 months to help with my mental health. In two weeks I will start to hike from Ben Nevis to Snowdon...
My husband of 64 was diagnosed with Gbm on March 1st, 2021. He had successful surgery, chemotherapy and radiotherapy and was fine for a year in good spirits. From February this year, seizures came back, he has lost movement in right arm and almost disabled...
I have just started treatment for chemo and am very worried. I live with my wife alone and am isoloted, there is no local cancer group around here.
Hello, my brother has been diagnosed with GLioblastoma stage 4, frontal left lobe. He had surgery and finished radio and chemotherapy 2 weeks ago. At the moment having 4weeks off, before starting 6 months oral chemotherapy. 2 weeks after surgery had blood...
Hi, I’m new to the support site but wondered if anyone could help me please. My father was diagnosed with stage 4 GBM in spring and has finished hisfirst 6 week radiotherapy. 2 weeks after his radio had finished he has ended up in hospital with bone marrow...
