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Hello everyone. It’s been a while since I’ve been on this group. My Dad was diagnosed with Glioblastoma Stage 4 and fought so hard to beat this horrible disease. Sadly, we lost him a year ago. I have come back to this group in hope that I can help...
I guess I should start with a bit of history - after having a suspected stroke in March, tests showed that Mum had a ‘small spot’ on her brain. Mum is 72 years young and in otherwise good health. She was referred to John Radcliffe Hospital where the...
Hi all My husband is 67 and was diagnosed in March 2022 with GBM 4. He is through the surgery (75% debulking) and the 6 weeks standard treatment and is on the 4 week rest. He had no symptoms apart from a slight left sided drooped lip for 2 days. He...
We lost my dad to ILD last year and my mum was diagnosed yesterday with Glioblastoma in her brain and likely her spine too. My world is falling apart. They have given her months and nor recommending any treatment. She will come home for us to give her...
Hi, After sitting in the sidelines reading this forum for two and a half years here I am joining you all. my Husband who is now 70 was diagnosed with glioblastoma grade 4 in December 2019 and had his tumour removed January 2020. It was all removed...
Hi... I wonder whether others have any insights they can share relating to my experience. This is quite long - so for the TLDR skip ahead a few paragraphs. My wife (41 at the time) was diagnosed with a tumour just behind her right eye in Dec 2019...
Hello, does anyone have any experience of obtaining a community neuro rehab, or Occupational Therapy, assessment? I intend to ask at next appointment. My dad has been diagnosed with grade 4 astrocyte tumour. Parietal and occipital lobes affected. Biggest...
Hi, My husband finished six weeks of radiotherapy and chemo three weeks ago. During the last week he became increasingly confused and at times unresponsive so I took him to hospital. MRI showed that his tumour had shrunk so the symptoms are probably...
Hi, my father is 81 and has recently been diagnosed with GBM. He was fine up until a month ago, although we’d noticed that he was losing a lot of weight. He, and my mum, attended my niece’s wedding where he suffered multiple seizures, resulting in a cardiac...
My 65 yr old but very fit and looks about 10 yrs younger husband was sadly diagnosed August 2020. He is going through treatment and is coping very well with this, and steroids have been helping massively, but we are having some horrible times with him...
