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I am typing this for my wife who was diagnosed in October 21 at age 57, GBM4. Having exhausted nhs treatment in febuary 2022. Getting 3 monthly mri scans and a chat with the oncologist they arnt doing anything else.
Hello everyone , I am coming to the end of my first course of temozolomide and radiotherapy. I just want to ask if anybody in the group has had a second course of temozolomide if so is the dose increased , I am currently on 145mg. Thank you all in advance...
I have been reading through alot of these posts and the what's to come really scares me. My husband was diagnosed with a brain tumour in August after left side paralysis. Never had a headache or a seizure. He underwent a craniotomy and 95% of the tumour...
Hi all, My name's Chris, my wife was diagnosed with GBM in June at the age of 48. She's had debulking surgery and just finished radiotherapy with temozolomide. Glad to have found this forum where hopefully we can share experiences of treatment and just...
Hi, I am new to this page and thought it may help. My dad was diagnosed with a Grace 4 Glioblastoma last may. He had chemo, radiotherapy and had surgery to remove his tumour. Luckily he then went into remission and was told that he was NED. Unfortunately...
Hello everyone , I'm new on here , my name is Charlie and I have glioblastoma . I had my primary tumour debulked 97% in the last week of June, I am currently having radiotherapy along with oral chemotherapy tablets , I have ten days of treatment left...
Has anyone been advised to activate a DS1500 form? My husband wasn't given a prognosis but the rules behind this form seem to suggest its for people with 6-12 months to live???
Hi, looking for any advice on what to expect after my husband has been told we are at the palliative stage, probably about 5 weeks ago my husband was told his tumour was still growing and no more treatment would be offered. Go home contact your gp and...
Hi I would love any information on the best diet for this type of cancer. My husband still has two very long weeks to wait until chemo and radiation start. I have been told to drop all vitamins and any anti oxidant foods to make the tumour more vulnerable...
Yesterday my husband was told by the oncologist that his GBM4 had shown minor growth over two recent scans and he will not now have his 5th round of Temozolomide. They will scan him again in 6 weeks and see him in 7, then decide what to do. He's 70...
