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I watch Eastenders. It is, a taste from home as I Iive in Barcelona since 1988 Nevertheless very poignant that the young character Lola is dying from a brain tumour. I think my husband would have felt recognition too. Was funny he was Spanish and knew...
My wife was diagnosed with GBM4 in March this year. She had a successful craniotomy but after round 4 of TMZ she was told on Monday that there is another tumour They will discuss options with us next week but she has decided that it’s all over and she...
Hi. just wondering if anybody has had any experience with Immucura for dendritic cell therapy? Juse trying to do my homework lol many thanks sarah
I’ve got a GB04. I’m taking 2mg of Dexamethasone daily. I take it at about 9.30 / 10 am and then off I go! peaking about 2 hours later for up to 7 hours. And during that time my brain is spangled, It’s difficult to concentrate, I get confused and need...
The struggle is more intense than I could ever have expected. All I want to do is stay in our house and hope that no one comes over. My neighbors have been so gracious to invite me to their holiday parties, but somehow that makes me feel even worse because...
Hi all hope everyone is hanging in there. Our rollercoaster ride did another loop the loop today when we met the oncologist face to face as a family. This was our first face to face since Sept 2020 and it was really weird being back in the cancer...
Husband has grade 4 and 90% removed in March but he also suffered a stroke. After radio therapy and one chemo treatment we are muddling along as best we can. This week he was sick and in doing so hurt his back so he has been bed bound since then. Will...
My mum had a GMB stage 4 and had what could be removed in feb, since then she has had 3 weeks of radio and 5 rounds of chemo tablets. 2 weeks ago she was admitted to hospital due to her breathing, she was then diagnosed with 4 blood clots on her lungs...
After initial diagnosis in February 2021 having had three operations, chemo, radiation and avastin my wife of 19 years passed away 26 July. Her health deteriorated very quickly from the end of April but we were able to at the beginning of June go with...
Almost 3 years after diagnosis and 2 debunking my beautiful husband was stolen from my by this disgusting disease at 5.15 today. His second operation in June left him with a stroke and mostly blind so had been bed bound since then. The last week he started...
