I've lost my soul mate

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After initial diagnosis in February 2021 having had three operations, chemo, radiation and avastin my wife of 19 years passed away 26 July. Her health deteriorated very quickly from the end of April but we were able to at the beginning of June go with her to her home country in Switzerland to spend her last few weeks with her family and close friends. I'm ok but am left feeling lost. Our two boys 12 and 15 years of age are ok. Just wanted to share

  • FormerMember
    FormerMember

    Hi Jarred, I am so very sorry for your loss...i hope you & your sons can find strength & comfort from your memories, this is such a cruel illness and it sounds like she went through so much.  I understand the feeling of lost to an extent as my husband was diagnosed a few months ago and I have felt very lost  since at times wondering how and what the future will be, but we have to carry on dont we. nice you managed to go to switzerland, i hope you have some family & friends to support you, take care of each other x

  • Sorry for your loss 

    my brother too lost his battle with gbm on July 26 th at 2.04am , miss him dreadfully, he too had a rapid decline from May . The oncologist assured us gbm is just sheer bad luck, doesn’t make it any easier . His decline was so difficult to watch , he was fit and healthy prior to diagnosis. 
    Hold your boys tight and reassure them their mum is flying high and pain free and watching over them and protecting them daily.  Try to stay strong and positive and don’t let gbm rob you of happy times and happy memories, cherish them forever. 
     One day at a time !!!!

  • Hi sorry to hear about your husband diagnosis, very difficult. Unfortunately yes we do have to carry on but stay strong and fight hard and make lovely memories that you can cherish forever, stay strong and positive!!!!

  • HI Jarred, my deepest sympathies to you and the boys. My boys are 15 and 13 so very similar family set up. My wife's 5 months in from GBM diagnosis and for the time being seems stable since surgery in July but I know that can't last. Take care of yourself and the boys and cherish the  happy memories.

    Chris

  • Hi Jarred

    so sorry for your loss. Glad to hear your wife was able to be with her friends and family. I'm dreading the day we need to say that final farewell to my husband but I accept that each day that passes brings it one day closer. GBM4 is cruel and evil for all concerned.

    Please remember that should you need to reach out, MacMillan is still here for you and your boys. I've popped a few links below that might be of interest if and when the time feels right.

    Coping with bereavement | Macmillan Cancer Support

    Bereaved spouses and partners forum - Macmillan Online Community

    We're always here for you. 

    Sending love and light and hugs

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Jarred,  I am so sorry for your loss. It's difficult to assimilate our love ones have gone. If I had my time again I would have spent more time with my husband , said more things, but it was all a rollercoaster. His seizures and tumour returned by March this year, a second operation was called off as his leg was going and he started also on  Avastin in June. It helped the leg a bit but  gave him thrombosis, more medication, mood swings, pain etc. I don't think Avastin was so great in the end.

    Just reading in the paper now they are near to a potential ground breaking immunotherapy dvax drug which can extend life for glioblastoma patients

    . It's such a cruel disease that has taken away our loved ones  but if others can be spared the same date in the future would be fantastic 

  • Thank you Daybyday, Yes the unknown was hard. Not knowing how long we would have together. Like you, my focus since then has been one day at a time

  • Thanks Sad life11, like your brother, my wife was fit and healthy and the decline was hard. I'm trying now to just create memories with the boys. hope you yourself have people around you for support

  • Hi Daybreak2, I keep thinking the same, I should have spent more time with my wife, said more things, but life was so hectic juggling work, looking after our boys, medical appointments and maybe part of it wanting to still think we had a few more years so there was more time for this. Hopefully a cure will come soon. Take care