Think he's growing his own solar system in that head of his

Hi Wee Me,

I hope you are all doing as best you can be, you have had such a lot of info to digest and  I know your emotions must be so all over the place with taking in this news. 

My hubby just started his 6 weeks of radio and chemo post surgery so im  very new to all this, so i dont have any experience to share. But i think so far ure hubby is doing amazing with his bravery and his running and dont focus on these timelines, I am never going to ask.

You are such an amazing and kind inspiration to this group and to your family, once you have gone through all the info perhaps ring the Dr back if you have more questions.  You need time to understand the options The one thing that strikes me about all this is that everyone is so individual in their respones to treatment etc, and ure hubby has shown such strength so keep focused on that.

Sending you hugs and strength, you can get through this...your words shine a light on so many others at testing times, keep some strength for yourself and take care xxx

Like your husband, I chose not to pursue the adjuvant higher strength TMZ when it was offered one month after the initial six weeks of radiation with lower-dose TMZ. . I had two main reasons: from my reading , it seems to be much less effective when the tumour is unmethylated, which is my case. Obviously, everyone is different and it may well work in some cases. The second reason was quality of life. I didn’t want to feel nauseated and exhausted half of every month, which seems to be relatively common.  But then again, I know there are people who suffer few side effects. Hopefully, some of them will reply to your post. Good luck to both of you, whatever your husband decides. 
PS I really appreciate your warm and thoughtful contributions to this forum We Mee. 

Ouch! That's really rough but good that you can still find the humour in it all! Do you know what the genetics of his tumour are? I guess you know that certain mutations are much more susceptable to TMZ. Unfortunately a lot of people, including my wife, have the wildtype version. She started on the high dose TMZ last month and yes the only main side effect was fatigue but only for those 5 days. After that she was fine. If his tumour does have the wildtype genes then I guess it's whether he feels the extra time it could give him is worth the fatgiue. I can understand why he wants to cling on to his running right now. He could perhaps try one month and then decide if it's worth it?

All the best,

Chris

The initial tumour was methylated so we can perhaps assume its friends have the same pathology. I suspect he'll try one round of this and see how it affects him. If he suffers too much nausea or fatigue that costs him running time then I suspect that will be an end to it. That was his main reason for not taking it when it was first offered back in Jan 2021.

In his ideal world he wants to feel well, run daily and then just drop. He is scared of a long slow decline in health which I totally understand. 

time will tell...

love n hugs

Wee Me xx