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Hi Its the dark hours between 3 and 4 am when I am awake and turn to the support here from all the caring and knowledgeable others going through this terrible thing. My partner was diagnosed in June this year (we are both 53), and he has had radiotherapy...
After a rough few weeks, yesterday we made the decision that we need some respite care - so my mum is going into a local cafe home for 2 weeks. How guilty do I feel!! It's Christmas and I feel like I am failing my mum!! H x
Hi all, I'm guessing many of you know that temozlomide is much more effective in patients who have a methylated version of the MGMT gene. My wife's tumour doesn't have this and we could tell when the oncologist told us that it really does mean the surgery...
We are 10 months into mums journey and I am finding things so very difficult! I don't recognise the person in front of me to be my mum. We took the difficult decision when mum came home from hospital after blood clots on her lungs to have carers help...
Hi I was diagnosed with GBM multiforme at the end of last September. I've had the debulking surgery, 6 weeks of radiotherapy, 9 months of Temzolamide and on the scans it had showed the tumor had shrunk dramatically . So I went in to my most recent...
Hi, my husband got diagnosed with glioblastoma unmethylated on 20th September. Had surgery to remove 90 percent on the 31st September. Now just finished week 2 of 6 of chemo and radiation. Before surgery my husband was happy, positive chatty and a wicked...
Evening Everyone! My siblings and I have really struggled through today. Little back story - mum was diagnosed with GMF4 in Sept after suffering inital symptoms in August. The tumour is inoperable due to its position, and also we have since learnt...
I have glioblastoma inoperable stage 4 terminal
Yesterday we went to the Royal Marsden Hospital for the last time. As I had suspected, my wonderful husband of 48 years was told his GBM4 brain tumour had grown and further chemo treatment of lomustine would not be beneficial. He is being referred to...
Apologies for this post. I know this is not going to bring my husband back and hope I am not distressing others. I do keep going over everything and wondering why he got GBM, even though they say the cause is not clear. My husband had dental implants...
