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I have never written on anything like this is the past, but everyone's messages made me pluck up the courage! My mum was diagnosed with a GMB stage 4 in Feb and had surgery to remove what they could 2 weeks later. Since then she came home and has had...
Hi, I'm very new here and not sure what I am hoping to achieve but feeling very lost. My mum was diagnosed at the end of August 2022 after suffering from a headache for several weeks. Since then we have had multiple MRIs, CTs, and appointments. The...
The medical team told us that it was untreatable and gave him a prognosis of 2- 6 weeks. Four weeks before his diagnosis he suffered a major heart attack, and needed to be resus on the operating table. He had 2 stents and a balloon procedure. After...
My husband was diagnosed with GBM4 in August and had a successful craniotomy on 2/9. Started Soc on 20/10 and today had a full Seizure. This was his first Seizure and it has scared the bejesus out of me. Now I don't want to leave him alone! He's had a...
Can somebody please tell me their experiences of what end of life symptoms could be when suffering this horrible disease. Does everyone go in to hospital or stay at home? I'm trying to decide what to do when my time comes. I have a young family so bringing...
My husband died on Oct 3 RD. He was 65 and this was 19 months after diagnosis. The first year went fine after the usual operation and treatment and he never wanted to read about the illness so thought he was cured. From February this year, seizures returned...
Hi, my husband finished his treatment (chemotherapy and radiotherapy) 10 days ago. He is feeling tired which we expected, but he is suffering from dizziness a lot. It happened during the treatment and we mentioned it to his consultant. He was told...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
This diagnosis is devastating and took my husband in only 3 months. My heart breaks for anyone going through this. It's excruciating.
We got the results of my husband's latest MRI yesterday and the oncologist told us that there is a new tumour sited just in front of the original resection site. It's about 1cm in diameter but as it's been 6 months since his last scan, we're not sure...
