Sudden back pain

HI Jacqui70

a warm welcome. Sorry to hear all you and your husband have been through over the past few months. GBM4 is cruel beyond belief.

My husband was diagnosed GBM4 in Sept 2020. He has issues with his back but that's as a result of developing osteoporosis in his spine following the extended use of blood thinning injections. GBM4 really is the gift that keeps giving...

Might be an idea to get your husband's back pain check out. If nothing else, it gives you both peace of mind that its nothing nasty. 

Hope things settle soon for you both.

love n hugs

Wee Me xx

Thank you. It has been a difficult few months. Annoyingly he was booked for an MRI scan on Wednesday - an opportunity to see if things have changed. Unfortunately he was in so much pain he couldn’t move!! Doc and physio think it’s muscular so he has been resting since Tuesday and pain relief is not required as often. Letter today inviting him to book again thank goodness. 

whole situation is not helped by the disability caused by the stroke. He is very tired and sleeping a lot and of course there is the confusion. Don’t know if these things are a sign of a change in gbm4. Has anyone else noticed this please?

HI Jacqui

Oh I hope things improve and you can get the MRI done over the next few days. It's beyond worrying - I get it.

I've asked out oncologist numerous times about what things I should be watching out for and he's repeatedly said "headaches, nausea and seizures". Last time, after the discovery of a second tumour he said to report any change from the norm to them. We see him tomorrow for the MRI results and to discuss where we are at. I'm dreading it.

I've taken the liberty of looking up some info from the main website that might help If the person you care for is dying | Macmillan Cancer Support 

My husband is sleeping a little more than usual these days He seems more confused but that one is hard to determine as his tumour impacted his speech and understanding from the outset. He does seem more "vacant" and generally a little slower. He's also cold a lot of the time. Who knows what is actually going on with him. Hes'a control freak by nature and is in so much denial as to his current situation that its scary. He just repeatedly says he's fine and there's nothing wrong with him. It's easier to let him live in that wee bubble of denial to be honest but bot easy to do.

If you're worried about your husband call your medical team for a chat. I'd call out anything that seems out of the norm - afterall you know him best. You can also call the MacMIllan helpline for advice. The number is below

love n hugs

Wee Me xx

When my husband was in more pain the Dr upped the steroids dosis and added a pain killer called naxopreno combined with 1g of paracetamol  That helped and made him more comfortable.

Gradually the dosis was varied.but we had naxopreno and paracetamol at hand. I think there is a lot of inflammation in general which causes the pain. He did sleep more.

I wish weeme and jacqui all the best for your husband's scans upcoming this week