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My mum was diagnosed with GBM4 in May, and is still taking chemo every 4 weeks. I’ve noticed more recently she has very little patience and gets annoyed with people around her very easily. We are understanding and try and take things she says with a pinch...
Hi everyone, I've been spending some time going through your posts on here and just wanted to say how helpful its been to read your stories and learn from your experiences. I'm in a quite unusual situation myself and can't tell you how important its...
Hello everyone I haven’t posted since my first one back in September shortly after my husbands traumatic Grade 4 glioblastoma diagnosis. He is just coming to the end of his 4 week break following chemotherapy and radiotherapy. He starts his chemotherapy...
Hi all new to this forum but just looking for some advice my dad was diagnosed with stage 4 gbm in july 2020 he had surgery chemo and radiation he has not had any treatment since 2020 as his scans every 3 months have been stable which is amazing as...
Hello everyone My dad's scan directly after treatment showed no active cells. His most recent scan 7 weeks after has showed a 'small area of disease infiltration' not far from the original tumour site. He described it as the size of a 'petit pois'....
i would like to share brief story of my late wife's GBM journey Started in October 2020 when admitted to hospital with confusion slurred speech, MRI revealed a tumour which was confirmed as GBM, had a debulk in November 2020 then started 6 weeks of...
Hello everyone I’m new here so hoping this is the right place to post. Have already added a couple of posts to threads (again not sure how all of this works) my father (70) has been diagnosed with a very aggressive grade 4 Glioblastoma which is inoperable...
HI everyone. thank you for all the lovely words of support. They really are appreciated. G passed away peacefully late on Friday afternoon with my son and I beside him and a nurse quietly keeping watch. Emotionally there's still a huge amount to...
Hello, Please can anyone who either themselves or a loved one has had radiotherapy for GBM4 share what it is like from beginning to end and any side effects. I'm so scared that I will not be able to think or use my mental faculties properly any more...
Hi everyone my mum has a grade 4 glioblastoma and had radiotherapy and chemotherapy in July it went well and she was doing really great. However in august she started to get unsteady on her feet, her blood sugar levels were high making her dizzy and...
