i would like to share brief story of my late wife's GBM journey
Started in October 2020 when admitted to hospital with confusion slurred speech, MRI revealed a tumour which was confirmed as GBM, had a debulk in November 2020 then started 6 weeks of chemo and radiotherapy just after xmas, then once that was completed went onto 6 cycles of tremozolide 5 days in /23 days off, during this oeriod she was lambing 10 hours a day at the farm, no effects
recurrent op in Nov 2022 was success again but developed infection, so opened up again but bounced back in style, Feb seen her admitted to hospital with pneumonia and covid, yet she bounced back again, Scan in Aug showed tumour infiltrated into brain, back onto oral chemo but stopped after 2 cycles due to side effects, lost all mobility at that point but still managed at home with wheelchair and me, ended up in hospital start Oct for respite and after 10 days got her home where sadly she become very agitated and delirium set in, was sedated and passed away 4 days later in 26/10/23
been a hell of a journey lots of good times not a lot of poor times just mainly at end
use all the support you can get from Hospice, Maggies, and Mcmillian they are all brilliant, reach out and grab with both hands.
