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Hello all,not sure how I’ve found my way here but I’m grateful that I have.My only brother was diagnosed with glioblastoma back in April.He was living alone in New Zealand,had surgery there but decided to come home for treatment and support.He was given...
HI thanks for all the lovely comments under my last post. They are very much appreciated. The past few days have been tough but I felt I should check in and keep you guys up to date as you have been a pillar of support to me. Things kind of went...
HI folks Realised its been a wee while since I shared any update or reached out here. Life's been a bit of a whirl these days. I feel as if I blink on a Monday and the next minute its Friday again. Things around here seem to be a on downward slope...
Hi Everyone, It's been a while since I've posted but I check regularly to see how everyone is getting along. We have had a tough few weeks but we now have hospice at home in. Each day is a curveball but we are slowly navigating our way through. Guess...
Hi all. Completely new here. Just posting to see if anyone else is in the same position. Last Friday my 79 year old mum was taken into hospital. After being completely fine, she started repeating herself, grabbing for things that weren't there, and...
Hi My mum completed 6 weeks of radiotherapy and chemotherapy in july. She has since had another 5 days of chemotherapy (tmz) and is due to start cycle 2 tomorrow. The reason I am reaching out is because she has been covered in a red bumpy rash for over...
Hi, looking to connect with others caring for a relative with a high grade astrocytoma. My brother was diagnosed two years ago. Some new tumours have appeared recently. I’m supporting him and his wife through meals at my place and phone calls. it’s...
my partner has been told he has malignant glioblastoma. he had surgery radio and chemotherapy 5 years ago. last year an MRI showed some changes, he was put on 6 months PVC treatment then another 6 months of Temozolamide. A week ago they said they seen...
We’ve just lost my sister who was 54 to Glioblastoma. She was a mum, daughter and sister and a wonderful, loving and rock to us all. Just 5 weeks! How do I and the family cope with this as I do not know where to start? Just thought I’d reach out.
Hello to everyone, I am new here. My little brother who is 53 was diagnosed with stage four glioblastoma, I feel I should’ve joined a long time ago. I am doing everything I can to support him and his lovely family inc my 2 teenage nieces and his wonderful...
