Lost my wife on 6th Feb

I'm really sorry to read this Mark. I lost my wife on the 17th but our local hospice team were very supportive and she was able to die at home as was her wish. There does seem to be a bit of a postcode lottery as to the support you get.

It's still early days but are you looking into any bereavement support at all yet? 

Not yet - I may well need it though.  Taking the kids away soon to reflect.  The last 5 months have been horrifying for us all. 

Hi Mark

so sorry for your loss. Sadly as Chris says, the medical care and support seems to be a bit of a postcode lottery. It's cruel on all involved.

I lost my husband on 27 October 2023, just over three years after his initial diagnosis. He wanted to die in the local hospice and thankfully we were able to honour that wish. 

Take all the time you need to heal from the past few months. Healing is messy and it takes time. Four months down the line I can honestly say I'm getting there. It's only when everything stops that you recognise just how much the GBM journey has taken out of you.

Be gentle with yourself and the kids. 

sending love and light and hugs to you all

Wee Me xx

So sorry you’ve been through so much on your own.  My husband was diagnosed in May 2023 out of the blue. He collapsed, diagnosed with the tumour then operated on within 3 days. 95% of the tumour was removed but it’s incurable. We have had lovely care from the Oncology teams but have had really bad care when he’s had to go into hospital with various complications.we have been left to deal with everything on our own until this last episode.His lack of care in our local hospital has been horrendous and we have 2 complaints and investigations going on.  We now have continuing health care, carers come in 3 times a day to help with his personal care. He now has a hospital bed in our living room along with so much equipment to help with his mobility. He’s never been ill in his life but now he’s has other health issues that are complications from having the tumour. He doesn’t want to go into the hospice but they are on board in case needed. We now have the “just in case “ medication stored away. It’s so hard coping alone

So sorry you are having to go through this. It’s such a brutal and unforgiving disease  

when the end comes you will give anything for just one more day so live every day like it’s your last, starting today  I wish you all the hope in the world x