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Hi all has anyone been on this chemo with GBM. We’ve been moved on from lomustine to this IV chemo thx
Afternoon all, I've done a lot of reading on this forum and found it very helpful whilst at the same time very sad given the experiences people have had. As a background to my/our situation, I turned 50 last year, my wife turned 42, we have two boys...
Hi everyone I'm new here and never done this before. My husband who is 55 had his brain tumour removed 10 weeks ago and is meant to start radio and chemo next week. However, we are currently waiting in A&E as he displayed stroke like symptoms and has...
After thinking Mum 80 year old Mum had the early onset of dementia, things got extremely worse where Mum struggled to remember her name and found it difficult to put a sentence together as she was unable to find the words. I took her to A&E getting her...
Good morning all, My Dad is now receiving palliative care at home and has been since April. He was given weeks to short months back then. He can’t talk very much anymore and what he does say we cannot understand. He has also been bed bound for the last...
Hi I've been diagnosed july 2023 with brain tumor and I was 52 years old. What a ongoing journey. This is the first time I shared away from my family and friends. I staying positive but I do have my down days. Struggle with the treatment and being reminded...
I’m not sure if this is the right place to post this, since I’m new here, but I also thought I should post it here because I’m new here if that makes sense? Just over a year ago, my then 82 (now 83) year old grandma was diagnosed with a glioblastoma...
Hi everyone, My beloved Dad passed away in March this year from a Glioblastoma. He was only 59. I'm struggling as he was my person. He always fixed everything and now I feel lost without him. I found out I was pregnant just after my dad passes away...
Hi All, I am new here. My mom, aged 75, is diagnosed with GBM Stage 4. She underwent surgery for partial removal of the tumor from her right frontal lobe. The surgery was done about 2 months back and since then she is at home. We have been taking her...
Hi there, my wife is 19 months into GBM and doing well, no recurrence, but we are people who think ahead (despite living in almost permanent denial). We've started to think about hospice options when the time comes, hopefully far distant. Can I ask, if...
