Glioblastoma brain tumor

Hi Toppie,

Welcome to the group and so sorry to hear your news. I cared for my wife who had a GBM.

I'm pleased you're able to stay positive a lot of the time. My wife did too and it made a big difference not only to her but all those around her. 

There's lots of really useful information on the Macmillan site about different aspects of cancer so if you haven't already have a good browse and come back with any questions. I found it really helpful just reading through the threads in this group to see what others' experiences had been like. Although we are all looking after someone with, or suffer from, a GBM we all end up taking slightly different routes depending on how it progresses and local care provision.

Have you been offered any counselling at all? Either way it’s always good to talk so please remember you can call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing. Or it may be as is the case for me that there are other local charities that can support you.

Hope some of this is useful and please do use this group to ask questions or just vent how you're feeling.

Wishing you all the very best,

Chris

Thank you for your lovely words and support. 

Hi Toppie, so sorry you've got this disease, but so pleased you reached out. My wife was diagnosed in November 2022, so we're coming up to 20 months now. She's doing well, no recurrence yet, but the not knowing is so hard. Uncertainty is so debilitating. But - we carry on and are finding joy in the everyday things and hoping for good months (and years ) to come. Hang in there. This community is really supportive, there are some lovely and very knowledgeable people here.

Hx

Thank you H. I'm already feeling no longer alone. X