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Hi all. I am new to the group. Recently diagnosed with an inoperable Glioblastoma and 1.5 weeks into standard chemo and radiation. It would be great to connect with others who may have experienced this. It has been a really hard 5 weeks for me, my wife...
Has anyone here been on lomustine longer term since being on TMZ? I wasn’t at the appnt where they switched the chemo and so I’m wondering if they said at this time there is a time frame of prognosis that we face as we haven’t been told this yet ...
Wanted views on this. At my initial consultation, my neurosurgeon opened up my scan and said ”theres something here that shouldnt be” ( i did already know this) Then he said “well it cant be cured and many people in your position think, ah well...
Good Morning, Hope you are all well! I wanted to find out if anyone has experienced a decline in memory and cohesiveness since completing a cycle of temozolomide? My Dad completed his first round last week and seems to have declined cognitively. I...
The syptoms that alerted us to my better half's glioblastoma were stroke like issues with her left hand and leg. Today during her second radiotherapy session she found her hand and fingers doing their own "ghostly" movements outside of her control. Is...
Ive been lurking a while. Seems more a forum for carers than patients/ sufferers? I had a few pins and needles back in April 24 and eventually went to the gp. Initially referred to the TIA clinic, then for an MRI . Finally saw a neurosurgeon in July and...
Just an update really. My husband is now nearly 2 years on from his GBM4 diagnosis, since Jan 24 things have been getting more difficult. Physically he is doing ok and still walks the dog daily but cognitively its much worse. His short term memory has...
Afternoon all, Just wondered if anyone else had experienced the following? My partner has had a temporary pause in her chemo (TMZ) treatment (half way through the 6 month cycles) due to low platelets and during this time has experienced several moments...
My husband is now refusing to take his medications as he says they are not doing him any good and he doesn’t like the taste. The majority of his meds have been changed to liquid but now he just refuses. I can give him his insulin but now he’s not eating...
Hello, my husband was diagnosed with GBM4 in March 2024. To say we were devastated, like anyone else receiving this awful diagnosis is an understatement. It’s in the left temporal lobe. He had been different some months before diagnosis but only towards...
