Has anyone here been on lomustine longer term since being on TMZ?
I wasn’t at the appnt where they switched the chemo and so I’m wondering if they said at this time there is a time frame of prognosis that we face as we haven’t been told this yet
thx
HI Dek
Lomustine isn't a drug that my late husband was offered so I can't comment from any personal experience during his journey. This is a safe and supportive space so I am sure that the others will be along shortly to share their experiences with you.
I did look Lomustine up on the main website for you. here's the link Lomustine | Macmillan Cancer Support There's some great information in there.
You mentioned time frames of prognosis.... I'm wary of these after sharing G's journey with him. Time frames are best guesstimates based on published averages and no one is average. Everyone is unique and everyone's situation is unique. Everyone will react and respond differently to the various treatment regimes so please try not to focus on time frames here.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now I'm sending you a huge virtual hug and lots of positive energy.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
