My husband is now refusing to take his medications as he says they are not doing him any good and he doesn’t like the taste. The majority of his meds have been changed to liquid but now he just refuses. I can give him his insulin but now he’s not eating or drinking just taking sips of coke and juice. His mobility issues are getting worse as he’s a bed 24/7 and has now spread to his arms and shoulders. We finally got an urgent appointment with the eye clinic to try and see why he had lost his sight. They advised that his tumour had weakened his optic nerves and there was nothing that can be done. He is getting weaker and he says he’s not giving up but we feel that he is. Our first grandchild is due mid November and we really want him to be here to meet her but deep down we don’t think he will. He sleeps all the time now. Palliative care is not happening- we are getting no help except when I call the GP or acute response team. Then it’s only for a few days and we are left to deal with him on our own. We now have carers 4 times a day but they are struggling moving him about to wash and change him
