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In Oct 23 my mum was first diagnosed with GBM4 and received surgery which removed 90%. In Dec 24 she had 15 rounds of radiotherapy and was on TMZ each month to Sep. The MRI scan showed a new growth and received Lomustine until start of Dec 24 where the...
Hi everyone, I have previously wrote about my dads diagnosis of GBM grade 4 and the fact he only got offered chemo- no chance of surgery or radio. we had a biopsy on the 6th of dec in which we told we would have to wait 2 weeks for the results. we...
Not sure where to start, I just needed somewhere to speak openly about what’s going on to others who might understand. It’s been 3 months since I last posted on here and a lot has changed. I still remember clear as day receiving the FaceTime from...
My dad has asked me so check in this group to see if anyone has had a similar experience and can share, we have a declaration of serious ill health form from my mums life insurance company, we fill out the details and the gp/medical professional has...
Hi everyone my son mentioned this article last night and I thought I'd share it with this group https://news.sky.com/story/doctors-look-for-clues-on-why-super-survivors-overcome-cancer-in-first-global-study-13297748 It's not solely about GBM but...
Hello everyone my name is Patrick. After having no symptoms, I had an absent seizure then fell 2 times in July. I went to the ER after and the CT showed a mass. I was then taken by ambulance to a hospital with a level 4 Neuro ICU unit. On July 12th...
The past few months have been like living in a nightmare… my wonderful husband has been diagnosed with this terrible disease. He was such a fit man, always on the go, never sat still. He’s currently laid in bed in the Hospice, and my daughter (Paige19...
Hi Everyone, Really just thought I'd check in and see how you were all doing? Mum is still very much the same, we've just got back from a week away with the kids which was nice but the constant worry is so exhausting. Went in to visit tonight, she...
With a kind of numbness that I can't describe. I gravitated here to let you all know that mum finally lost her battle with GBM yesterday evening, 2 years and 4 months post diagnosis. She started to deteriorate 10 days ago and had a driver fitted to...
Merry Christmas , everyone. Remember its just a day. No matter where you are on this journey, may it be a day filled with unconditional love and far too much chocolate. Thinking of each and every one of you today. love n big hugs, with a helping...
