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I lost my mum July 2024. I lost my dad February 2025, then diagnosed with Glioblastoma Multiforme stage 4 left temporal lobe in March this year. I was operated on April 8th this year. I was so lucky to have it all removed, but for the last few weeks...
5 weeks ago... symptoms included, Headache Unsteady on feet, irritable/mood changes, loss of peripheral vision, fatigued, confused.... all that he had ignored for possibly months. He is stage 4, no surgery, no chemo, no radiotherapy... just sent home...
I’m heartbroken, and can’t think straight but wanted to reach out to you all & thank you for your support xxx
When new tumours are found - 2 very small - along with the original stable one, what treatment is the norm? Original tumour not operable. New symptoms of vision and severe balance - problems which I fear will result in further treatment not being offered...
So last Tuesday we had the worse news that the tumour has gone wild and is growing quickly down the back of his head and in other areas. A week later my husband is now completely bed ridden & the hospital bed has arrived along with the other contraptions...
Hi, My mum was diagnosed 2 years ago with GBM and was given a prognosis of 2 years. We are so grateful she is still here and receiving stable scan results. Since she was diagnosed the right side of her body has never been the same, it seems completely...
Hi All, Arounf Feb last year, my mom got diagnosed with GBM, She had surgery which removed around 90% of tumor, radiation and a year long oral chemotherapy. She survived and recent MRI also came clean which is a big relief. 1st 6 months were better...
Hi, does anyone know if the cognitive decline from a re-occurence is likely to improve? My husband has now completed 6 cycles of TMZ and also on a trial which will finish soon, but i cannot see much difference cognitively. Physically he is fine just weaker...
Hi everyone After having a couple dizzy moments at work I went to A&E and got the shock of my life being diagnosed with this. I am only 44 years old. They cannot operate due to location so will learn what they can do in the next few weeks. I assume...
Glioblastoma Multiform GD4 where do I start on this painful journey. My husband a very fit & active 57 year old diagnosed in August 2022… operated on, radio & chemo followed on & then 6 months of temozolamide. Three month scans showed all clear until...
