A year after Treatment

Hello, I am not sure I can be of a great help, but just to share my experience. My husband had all the standard treatment with 6 months of chemo. It has been 19 month since diagnosis and he is unwell every day (dizziness, nausea, weakness, irritability) and this with clear MRIs (no contrast enhancement), but increasing Flair. Is this common for any glioblastoma patient after treatment? I don't know. The doctors don't explain. Maybe someone wants to bring there experience here too?

I totaly understand how hard it is to see it and not even know the reasons and having less and less hope for improvement. 

Take care.

I can add my own experience , nearly a year post diagnosis and almost at the end of treatment. I have had no problems, but this seems to surprise the doctors who seem to think I should be experiencing some if not all of what you describe.

I have seen my scans and although the site where the tumour was has healed, there is quite a bit of damage caused by the treatment itself. Radiochemo does destroy a lot of healthy cells as well as cancerous ones. This is why I cant drive for 2 years post end of treatment as the cells dying could cause seizures apparently. 
seek advice from the medical team, good luck . X

HI Alk_care

a warm welcome to the group. Sorry to hear about your mom's diagnosis but glad that she's been doing ok, all things considered.

The changes that you commented on are quite common as far as I have experienced. I supported my late husband G through the 3 years of his GBM journey. Speech was always one of the big issues for him due to where the original tumour had been. I would encourage you to speak to your mom's medical team and let them know of the changes you've observed. It may be that they need to tweak her medication. I always worked to the rule that if it was preying on my mind, I would ask the nurse/dr. There's no such thing as a silly questions.

A GBM journey is an emotional rollercoaster ride for all involved and I really don't think there is a "normal" life ever again but you do go through spells where things feel more normal. At the end of the day you just want her to have the best quality of life and to enjoy making new memories.

sending you love and light and hugs

Wee Me xx

Thanks everyone. We checked with doctor's multiple time but they are adding symptom based medicines so I am not getting any long term plan from them. I was thinking to start physiotherapy to improve the strength.

My husband is 2yrs post diagnosis and still on chemo,no side effects or symptoms to date.