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My hubby is 51 and was diagnosed in November 24. No surgery due to where it is,right sided weakness and brain train on left side. Hes had 6 weeks radio mon to Friday alongside a chemo tablet everyday fif 6 weeks he's on a break till next chemo for 5 days...
This is the first time I have ever been part of a group discussion & I can already feel the strength it is giving me… ️ we all try to do our best but knowing there are others going through this is a comfort albeit difficult x
Hi all It’s been a while since I last wrote following new tumour growth for my husband in January .. too deep for surgery so he’s on his 4th round of chemotherapy - TMZ again. We get scan results on Tuesday to see if it has slowed the growth down. I...
My husband had 95% of tumor removed 3 1/2 weeks ago. He has told me that he still has a feeling like his eye is being pushed out. Does anyone have any ideas if this is how it should feel as it is only a short time?thanks
This is Lisa and my husband is Dave. Last October he started having bad headaches which he put down to a VP shunt in his head. He suffers from epilepsy and has done since he was 17. He had all MRI and CTS and was told in February it was a glioblastoma...
My father (53 M) has a Glioblastoma at the junction of the posterior body and splenium of corpus callosum. He had a biopsy at Brown university in Rhode Island. Does anyone know a neurosurgeon who can safely perform a resection as the surgeons at brown...
Hello everyone x So, as from my last post, I went into the New Year with a heavy heart .. D has been doing so well and the thought of the New Year was tough .. would this be a good one for us? D had his routine three month scan on Sunday. We received...
HI, this is my first post, have only joined the forum today. I was looking for a group or more information about young adults with this condition. My 21 year old son was diagnosed with a brain tumour in October. He had a craniotomy to remove at end...
Hi everyone, September last year we sadly lost my mum to GBM. It was a short journey, lasting only 4 months. Upon reflection, there was a lot of info my family and I wish we had, mainly about what was going to happen next in her journey. ...
Hi all, I've stumbled on this forum after doing lots of research about my 59 year old sister's very recent GBM diagnosis. In Oct '24 she had a stroke and the brain scan taken at the time showed no sign whatsoever of a mass in her brain. She made lots...
