New tumours

Not sure there is a norm. Would depend on various factors, overall health, reaction to previous treatments, how well a person coped , and of course the persons own wishes about further treatment. Good luck.

HI CT1234

sorry to hear about all that is going on. The best people to advise you at this point are your own medical team as they have all the relevant information.

When G began to have signs of regrowth they offered him a further course of chemo (TMZ) but he declined that.

Do you have an appointment scheduled soon? 

sending love and light and hugs

Wee Me xx

Thank you for your reply. Sadly been told today he's not well enough for further treatment. Such an awful disease. 

Thank you. We've been told today that he's not well enough for treatment.  Diagnosis Aug 24. Inoperable, responded to radiotherapy and chemotherapy.  The part of this journey I knew would happen is happening now x

Hi, I haven’t introduced myself to the group and to date have not involved myself in discussions. I had however to respond to your posts. (I am another who understands completely what you are going through, our story being very similar. Diagnosed in July 23 my husband was in a very similar situation when his tumour recurred. He passed away at home last November.)

My advice would be to take all the help on offer. Marie Curie are also wonderful and if you can get palliative care in place asap that makes a massive difference. You will find the strength to get through the weeks ahead.

I am so sorry to read your account. As you are no doubt becoming increasingly aware (sadly) you are in the company if so many who fully understand.

Sending you much love.

Thank you so much for reaching out. I really appreciate it. I am so sorry that you have been through this. I'm in my 50s, my husband in his 60s and with teenage children. I know from reading posts that it doesn't discriminate in age and so many people of all ages go through this. It's good to have this community. Love to you too as you navigate this difficult time after losing your husband.  

Thank you for your kind words when you have so much to contend with at the moment.

My husband was in his 60s too and although my children are older than yours it has been tough on them. This illness strikes out of the blue and takes down the fittest, least likely individuals.

I hope you get all the information and support you need from your Team. We were very fortunate in that all the different “ strands” of health/ medical teams worked together to get us through.

In this situation, you will find an inner strength to get through, taking each day at a time. I know this has been said many times before but in my experience  articulating, “ Today, we will be okay” and focusing on what is immediately before you is the way to cope. 

I will continue to be thinking of you.
Xxx

• Just 2 weeks after being told there's no further treatment my husband has passed away. He deteriorated every day. We were very lucky that he came out of hospital after 3 weeks and had 5 days at home - bed bound, in a hospital bed, barely eating - but home. We had special time together as a family. The last 2 days were in the hospice which was the best thing for us. The support from palliative care was invaluable and sharing on here has helped. It's an awful journey but one we've taken as a family x

I am so sorry to hear this; I have been in your position and know how awful it is to observe. The deterioration is so quick, you don’t fully have time to process what is happening properly.

I hope you have ongoing support. I found that I was in shock, even though I knew what was coming… if that can make sense.

Sending you lots of love and a virtual hug!

• Thank you, yes lots of support and like you said focusing on 'today' has helped a lot. I appreciate your kind words x