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Hi, My step dad was diagnosed with GBM last week. He will go for surgery next week to remove the main tumour but not the second tumour (which does look more like a shadow) and not the shadow line from the main tumour to the other. Has anyone else been...
Hi, I'm new to posting, not sure yet how to search in this particular forum? Apologies if discussed many times. Basically my brother (6 months from diagnosis) is currently in hospital, he sleeps all the time just wakes when nurses speak to him or if...
Good evening, my husband has been newly diagnosed with glioblastoma, he has surgery to remove the tumour and we are waiting for a treatment plan. He is very low and I can’t imagine what is going through his head and mind and feelings. Is it normal to...
Hello My husband was diagnosed with glioblastoma whilst we were on holiday, when he suddenly suffered seizures. Back home a biopsy didn't take place until a month later, then treatment didn't start for another 6-7 weeks. In that time his tumour had...
Hi, this is my first post here. My brother was diagnosed with glioblastoma in November and had surgery in December. Since then he's been on radiotherapy and chemo. Recent scans 5/6 months post surgery have shown changes in his brain but his doctors can...
Hi All I've been reading some of the stories on here, firstly I just wanted to say how brave everyone is and wishing everyone the best for there journeys with this awful disease My Auntie was diagnosed with a GBM just before Christmas. She had a...
Thanks for giving me a space to post. We as a family as finding this disease is so cruel as no one can tell you how it will unfold as they say everyone’s journey is different. The hardest part is as the disease progresses we lose the person we love even...
Hi everybody not sure what to say but my brother in law was diagnosed with stage 4 and couples of weeks ago and his decline seems to be so rapid he was to start radiotherapy but is too weak. I want to help my sister cope and would welcome any ideas, thank...
Hello, I’m feeling desperate right now, my mum was diagnosed with Glioblastoma just a few weeks ago. Had 98% of it removed 16.04. Had been due to start RT and Chemo on Weds (01.06) but has had to be hospitalised due to same symptoms as first diagnosis...
Hi everyone. Just to introduce myself and my situation. I have just turned 55 this March. I collapsed/had a possible seizure late on Xmas eve and I was taken to A&E where an emergency CT scan on Xmas Day revealed I had a 40mm lesion in my left anterior...
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