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Hello I'm just starting out on a journey not knowing what comes next. I have had 7or8 years on "watch and wait" so I ignored CLL and a recent bout of COVID stirred it up. I'm up in Lincolnshire anybody out there? from my area. Are there any support...
I was diagnosed with CLL, 2 years ago, managed to get on a trial using a targeted therapy monoclonal antibodies. The treatment cleared all my lymph nodes swelling. My lymphocytes levels have been normal for 2 years. Wanted to reach out to anyone who has...
I was first diagnosed about 5 years ago. It was picked up very early from a routine blood test. I have tried to ignore it, having been told that something else was probably going to kill me first before the leukaemia. However it has eaten away at my mental...
H i ,just been diagnosed and on watch only. However my travel insurance does not now cover me. Anyone know of a Company that does. I will also be over 70 soon. Many thanks.
Hi, I have a lot of questions about HCL. I have HCL and I have been treated with Cladribine and I will be treated with Rituximab in 2 weeks. I have started having some issues in my skin. I have been reading that it can be because of the antibiotics...
Afternoon. I have recently been diagnosed with CLL. I have been finding the fatigue and affects to my Mental Health quite hard to deal with. I have taken sometime off work as I found it quite difficult dealing with work effectively on top of everything...
Hi I've posted a few times about my husband being diagnosed with HCL. He had chemo treatment end of February and after recovering from the side effects of that, he seemed to be quite well. After a phased return, he returned back to full time working...
Hello, I’ve been diagnosed with CLL and on watch and wait, I’m looking for face to face support groups also. Can you have rakki with this condition? Thanks
Hi, I finished my treatment for CLL in February and in March my hair started falling out. My GP says its my body recovering after being under stress, bit like being pregnant and it will grow back. Its growing back very slowly and although some is still...
Hi there. As of 11.30 today I now have a diagnosis of CLL and am on a watch and wait. More nerve wracking and waiting. How do people do it...its the waiting that is so frustrating
