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After almost one year having Pancytopenia I have finally got the bone marrow result back as HCL. My haematologist is very confident that all the markers point at classical type , but my BRAF mutation came back as negative which is unusual . I have...
Hello forum members, I have been diagnosed with HCL. I know that it’s rare, I would appreciate shared experiences of treatment with Cladribine.
My husband was diagnosed two years ago his latest blood test results are all over the show they requested bone marrow testing and ct scan what are they looking for??
Hi, i was diagnosed with active CLL at the start of July and was put straight into treatment, i had probably had it years without realizing it., hadn't been to see a doctor for 14 years. It was only picked up in a random blood test because i had an infection...
I hope everyone is as well as they can be I was just wondering how people deal with the cold?
I would love to engage with others for support and give support too! I’ve recently been diagnosed with CLL although my symptoms don’t apparently match up with the biopsy diagnosis as I shouldn’t be feeling so unwell apparently so I was sent for a bone...
Hi all, got told i had cll in feb, since then im finding it hard to cope with the breathlessness pain in legs and stomach on watch and wait, but finding it hard to cope with all these symptoms every day brings something new, these past couple of months...
Hi I've just joined and about to start treatment. i have opted for Ibrutinib. Has anyone else taken this? If so, how was it and any advice. Thanks
Hello, I was diagnosed with SLL during the summer and given two courses of Prednisone. It worked remarkably well and my haemoglobin levels returned to normal. Several weeks later, I started to feel lethargic and down. Soon afterwards I developed severe...
Hi all, So my wife of 33 was diagnosed with CCL in June 22, we have had the usual blood tests for her be put on "watchlist" so we have our next round of blood tests this November, I'm always telling my wife I'm positive of the results but to tell the...
