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Hi all, 20 minutes ago my doctor rang me and told me i have CLL… it wasnt how i was planning to start my day so i thought i would pop in and say hi. Now what do i do ♂️
Hello! I have been on venetoclax and obinutuzamab for my CLL and SLL since January 2023. My labs are all looking good except for my monocytes which keep rising. My oncologist keeps telling me not to worry about it but can't tell me why it is happening...
Hi all. New to the group too. Diagnosed a few weeks ago. I'm 57 and have been feeling unwell for around a year. Put it down to menopause and another condition I have. GP kept doing blood tests though as he wasn't sure and spotted the rise in numbers...
I was diagnosed with CLL in November 2018. I wasn't ill in anyway but just visited my GP because I had a small lump on my neck. Initially my GP quite rightly, thought it was connected to some travel vaccinations but when it didn't go down (it never changed...
Hi everyone, I have just been diagnosed with CLL. I’m 38 and have two kids (8&2) and a great supportive husband. I am struggling to process everything at the moment and awaiting staging information from a recent bone marrow biopsy and CT scan I had...
Hi I am new to the group and this is all new to me ,dad got diagnosed with chronic leaukmia Thursday gone ,been in a daze all weekend, my dad also as mental health problems which at the moment are under control with physcatrc medication and weekly mental...
Hi, I would like to introduce myself to this group. I have just been diagnosed with CLL I am a fit 71 year old and shocked to be told I have this... My sister passed away on 22nd January with CNS Lymphoma, but she started with a rare but similar blood...
My husband has just finished his course of cladribine for HCL. We know and were informed of side effects, and he's got several which have built up over the past week, though not of major concern. For the past two days he's been aching all over, and...
Hello i am new to the forum and am about to start treatment for CLL. Have been on watch and wait for seven years and spleen is now enlarged and this is the main reason for starting treatment. Trying to stay positive but the fear has got a grip at...
Hi all, I was diagnosed with CLL a couple of weeks ago. I was quite surprised because I didn’t and still don’t have any symptoms. It was detected in a routine blood test. I am 49 years old with a youngish family. First week was a bit tough, but I am...
