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Hi all just a very quick question, and apologies if this has been asked before. The detail concerning being able to get an exemption certificate for prescriptions for cancer seems a little vague. Most descriptions I’ve seen say “have been diagnosed...
Hi All Was advised to join up by a work colleague after they found out I was diagnosed with CLL last week. I was diagnosed having a blood test following some unrelated heart issues. Now in the monitoring phase. Wishing everybody here all the best irrespective...
Hi all I'm new here hello I'm shaun call me Bean Hello all i was diagnosed in May 25 2022 I'm watch and wait Its all very worrying as i want to speak to otheres with the same as i have i worry about everything. Im not taking meds should i be ? Im...
Hi all, Does anyone have any recommendations on Travel Insurance? I have CLL but not having any treatment (watch and wait). I’m 49 years old and just looking at family holidays next year. Any suggestions on which insurance companies to get a quote...
Hello…I was diagnosed with CLL in April 2022 I was 55 years old,it was picked up during a routine blood test for an under active thyroid which I have had for years. Was a total shock, haematologists said to me in first consultation that of all the Cancers...
Hi my 25yr old daughter has recently been diagnosed with CLL, she’s just been told by hospital, there is nothing more they can do for her, she has tumours that are appearing in most of her organs i.e brain, both lungs, bowels and kidney and the only thing...
H my mum was referred urgently to A&E after routine blood tests showed alarmingly high WBc and Lymphocytes. She was told they suspected it to be Lymphoid Leukaemia. I’m only just getting over Breast Cancer myself and now am learning about CLL….(am I...
Trying to understand how chemotherapy treatment in CLL mum has just had her first cycle of treatment ( chlorambucil ) she says her white cells have gone from 250,000 back to 23,000 as I was not at the appointment with her , I’m trying to understand...
Morning folks, I’m in the early stages of my CLL journey, having been diagnosed around 15 months ago at the age of 48.My numbers are still pretty low and my haematologist had even advised 12 month reviews-great news!! However, I’m now 3 months into...
So I recently got diagnosed with CLL with a rare sub type nkcells whatever that means. Apparently it started in November 2021 but it was only Nov that my Dr got worried after my 3 months routine diabetic blood test so on Dec 28 he rang and asked me to...
