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62yr old. episodic night sweats since 2006. bone marrow biopsy 2019 and subsequent CLL diagnosis (by NHS consultant who casually remarked that i might live 10yrs). currently on watch and wait but night sweats now constant and the last three days slight...
Hello everyone. This is my first post on this site. I hope I am among possible new friends in similar situations. In brief, well as brief as I could possibly be. 6 years ago ( now 64) I had to finish my trade due to an unknown problem with my legs...
Does anyone know if there's a CLL specialist at the Royal Surrey? My consultant haematologist started off life as a pathologist.
Hi I was diagnosed with CLL in December , 8 days before my 53rd birthday after having routine blood tests to go on HRT! As far as I knew fit & healthy. Its a shock, I'm angry, I'm lost and I don't know how/if to tell the kids (14,24,29). Xmas and...
Hi everyone, I have been diagnosed with B Cell - CLL Leukemia just 2 weeks ago. Its taken 18 months to finally get a diagnosis. (Long story). Anyway I am struggling to process it all and haven't been to work (self employed) & I've just cried everyday...
Hi, My name is Cassie and I am 40, I have 3 children 14, 5 and 3. I was diagnosed with mgus in July 2023 (39) which was found after bloods from investigations into high blood pressure. My high blood pressure started in April 2022 and the blood...
I have CLL and will be starting treatment with acalabrutinib in the next few weeks. Any information and support is welcome.
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Had Cll for thirty years, in the last 8 years I have lost three stone in weight, Any ideas how to gain weight. I eat very well, I'm 77yrs old. Docs say my CLL is stable. Any ideas how to gain weight? I am also aways very tired. Thanks Smudg...
I was diagnosed with CLL when I was 47, now nearing 60 & have just started treatment, taking pills, I'm always picking up every little infection going, getting to the stage where I hardly go out!! Does anyone know if I can claim any benefits. My anxiety...
