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Hi all I'm new to the group I was diagnosed with CLL last Christmas after a random blood test and since then I have started having a few things crop up and wondered if any body else has the same problems. Excessive sweating all day and night sweats...
Hi Everyone, I was diagnosed Feb 2016 with CLL and put onto watch and wait. generally the bloods have gone well apart from a couple of spikes. Im now being tested annually. One thing that I keep forgetting to find out though is there any specific...
Hi - I have been in remission from CLL for 10years but unfortunately it has relapsed and I need treatment again. I have been given two options: Zanubrutinib for long term or Combo of ibrutinib and ventoclax for approx 2 years. Just wondered if...
I have a question about HCL and New Style ESA. I have been on New Style ESA for four months now. I will have a health assessment soon and I am scared if they say I am fit to work. The thing is I have some good days (I feel really excited when this happens...
Hi I have a question regarding mosquitoes and being in remission. My husband has been in remission from HCL for the past 10 months. All his recent blood counts are very good. We're planning a trip to Italy in autumn next year, to an area where there...
Hi everyone I have CLL I was diagnosed in 2020. I have had chemo and targeted therpy and now back on 'watch and wait'at my last appointment I was told I hadand enlarged lymph node in my neck just above my collarbone. Very recently I've had quite afew...
Diagnosed with CLL last month,I'm so tired,emotional, confused and worried...I'm sure everything will get better.once I've got things sorted mentally, physically and financially. How did you all cope?
Hi there, I am not very good a this kind of thing but here I go anyway. My story is i had a fall in the February 2023 and by September i still had pains in my shoulder and hand. I went to the doctors who did the usual blood test and xrays. I received...
My daughter is 25, she began a journey with cancer over 2 yrs ago, it started in her appendix, she had appendix removed and chemo etc, to cut long story short, it began appearing throughout her body after this, sarcoma in legs, lungs, behind her eye,...
Hello i am awaiting diagnosis for CLL , D day is next week after 3 week wait so far . wasn’t too bad to begin with but getting more and more scarred as it gets nearer . i am a fairly positive person ( tho terrified ) but my lovely husband today...
