Hi - I have been in remission from CLL for 10years but unfortunately it has relapsed and I need treatment again.
I have been given two options:
Zanubrutinib for long term or
Combo of ibrutinib and ventoclax for approx 2 years.
Just wondered if anyone had experience of these treatments. I am particularly keen to understand tolerance levels and side effects. Many Thanks.
Hi BrotherGrim and a warm welcome to this corner of the Community although I am sorry to see folks joining us and sorry to hear about yyour ongoing CLL diagnosis journey.
I am Mike and I help out around our various Blood Cancer groups. I don’t have Chronic lymphocytic leukaemia (CLL) but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma) ……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell - Not Otherwise Specified NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my blood cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
There are a number of active members on the group at the moment so let’s look for them to pick up on your post.
You can look through the discussion and see the ones that mention these drugs.
I am always around to help more, just to chat and to answer questions.
