Watch and Wait - Warning Signs

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Hi Everyone,

I was diagnosed Feb 2016 with CLL and put onto watch and wait. generally the bloods have gone well apart from a couple of spikes. Im now being tested annually.

One thing that I keep forgetting to find out though is there any specific things to look out for, warning signs as it were..

I'm suffering with other things like insomnia and depression and the wonderful year that 2020 had been hasn't helped either, getting to see a doctor is difficult and I feel like I'm being a hypochondriac with ever little infection I keep getting.

So is there anything in particular that I have to watch for.

Thanks for any advice and stay safe in these trying times

Craig

Thehighlander over 3 years ago

Hi again Craig.

Totally different type of blood cancer but found this info sheet that may help.

www.macmillan.org.uk/.../chronic-lymphocytic-leukaemia-cll

Mike (Thehighlander)

It always seems impossible until its done - Nelson Mandela

My cancer story

Tortola6 over 3 years ago

The reply from Thehighlander should help you, as the effects of CLL do vary a lot.

The common signs of increasing disease are from blood samples and swollen lymph glands.

Some people suffer from fatigue, but not everyone.

The IMPORTANT things are to make sure you eat a good healthy diet, and takes lots of exercise. These two things really do make a difference to the progression of this disease.

To give you some hope for the next year, I was diagnosed with CLL back in 2005, so 15 years ago, and I have had NO treatments.

I suspect your disease may also be very slow progression since your doctor only needs to examine you annually.

Good luck in 2021.

Dick

Phoenix13_uk over 3 years ago in reply to Thehighlander

Cheers this really helps, plus its gets me motivated to get back to the gym or at least going out have having a walk

Phoenix13_uk over 3 years ago in reply to Thehighlander

thx

Good_Coffee over 3 years ago in reply to Tortola6

This also gives me a lot of hope. My boyfriend has just been diagnosed, has no symptoms and is fit and healthy. I hope that we get another 15 years. I hope we get far, far more.

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Watch and Wait - Warning Signs