Introducing myself

Hi  

It is such a shock to have a Secondary diagnosis I agree. My initial BC diagnosis was Nov 2013 and secondary 4th Jan 2018.
 The Secondary was due to a vigilant GP who happened to be married to an Oncologist and put two and two together with symptoms: backache and diarrhoea (!). My profile lists what I’m on currently. 
I retired on medical grounds in 2019 following 18yrs as a Youth Worker ( and Careers Adviser) in N London, so had some experience of SEN & ALN attending Annual Reviews at schools. 

So, what I am saying is welcome to the SBC Group in a fairly meandering way :-) 

Treatment has moved on since 2009, so there will be options available. 
Please join threads that interest you on Macmillan. I also post on the Breast Cancer main Group on the Awake Thread. There are quite a few Secondaries posting on there. 
Judith xx

Hi.... I was warned after treatment the first time that it would proberly come back as it was hormone related... So was shocked when a different strain was found in other breast had the Masectomy & reconstruction at the same time.... After scans, MRIs & biopsy was informed in May I had 3 low rate tumours in spine....  October new scan showed 1 of those tumours had grown.....March scan showed a significant growth in 1 of the tumours..... I've decided to not have treatment & am just on pain relief..... I did have 5 courses of radiotherapy it was supposed to help ease the pain in October over 5 days reacted badly & was hospitalised so won't be having that again 

I'm also on secondary bone cancer site,    incurable cancer site   & the breast cancer site.... Struggling with my son I'm hiding my pain most of the time from him not sure when is the right time to tell him or how not sure if to do it now as ive no idea of time expectancy..... Have his future to plan to make sure he is ok & prepared to look after himself....

Hi

I am posting this link in case it might be useful

https://forum.breastcancernow.org/t5/Living-with-secondary-breast/ct-p/secondary_breast_cancer 

Macmillan might be able to provide advice about counselling too. Also, this may be of help:

https://www.mariecurie.org.uk/help/support 
Judith xx

Thank you will have a look