New secondary diagnosis - Ribociclib & Letrazol

Really sorry to hear your news. Yes ribociclib was my first treatment along with a bone strengthening infusion among other things. From reading other people’s comments this seems to be the preferred choice. My body didn’t play ball so I was switched Abemaciclib. They may do a biopsy of your bone, perhaps after the bone scan. 

I think it’s fantastic they did a PET scan.

All the very best for your results!

Hi Peaberrie thanks for commenting, how long were you on Ribo for before you changed meds? I hope your treatment is going well x

From memory I was on Ribo for 3-4 months before my liver enzymes became a problem. No everyone has this problem and to be honest I had no other issues on it. 

Please keep us updated with your results. It does sound as though your hospital is throwing everything at it for you. X

Hi, I started on it last month but stopped to have some surgery which I have just finished. I took it for 19 days and had no side-effects. I will let you know if this changes when I go back on. 

Betty64  thank you for your reply good to know you didn't have any side effects - I hope you are feeling ok post your surgery x

my specialist nurse said many people don’t. I have had my thighbone pinned but I’m making good progress in my recovery. It was last Friday and I can now walk without crutches for short distances inside.

I'm on Letrozole and due to start Ribo next month.

Still undecided whether to take it

Hi 

I was diagnosed with secondary breast cancer with it in the lung & nodes.

this was April 2023 & I’m on my 22 nd cycle of Ribociclib. I started on letrozol but local chemist couldn’t supply so I’m now on anestrazol.

I had very itchy red arm & legs in the 2023 summer, but soon this stopped. I did feel sick early on, but this also went.

now I have bouts of diarrhoea usually 3/4 th week but have pills that stop this when it happens.

My July 24 scan showed lung was almost clear & my nodes have shrunk a great deal.

my next scan is on Friday. I thank god for Ribociclib & the researchers. I know it doesn’t agree with everyone, but I’ve been lucky & hope it continues. x 

good luck with your treatment. x

Craftypat its really good to hear that the medication is working for you, i'm just waiting for mine to get delivered then will start on it next Monday (i've got plans for weekend and i don't want to spoil it by having any potential side effects!)

What tablets do you take for your diarrhoea? I always have imodium in the house but not sure if the ingredients are ok to take with Ribociclib.

Good luck for your scan on Friday xx