New secondary diagnosis - Ribociclib & Letrazol

Really sorry to hear your news. Yes ribociclib was my first treatment along with a bone strengthening infusion among other things. From reading other people’s comments this seems to be the preferred choice. My body didn’t play ball so I was switched Abemaciclib. They may do a biopsy of your bone, perhaps after the bone scan. 

I think it’s fantastic they did a PET scan.

All the very best for your results!

Hi Peaberrie thanks for commenting, how long were you on Ribo for before you changed meds? I hope your treatment is going well x

From memory I was on Ribo for 3-4 months before my liver enzymes became a problem. No everyone has this problem and to be honest I had no other issues on it. 

Please keep us updated with your results. It does sound as though your hospital is throwing everything at it for you. X

Hi, I started on it last month but stopped to have some surgery which I have just finished. I took it for 19 days and had no side-effects. I will let you know if this changes when I go back on. 

Betty64  thank you for your reply good to know you didn't have any side effects - I hope you are feeling ok post your surgery x

my specialist nurse said many people don’t. I have had my thighbone pinned but I’m making good progress in my recovery. It was last Friday and I can now walk without crutches for short distances inside.