Hi ,
I was diagnosed before Xmas to have breast cancer and that was hard enough to listen too and take in , then after a long wait for my ct and mri for the mdt team to decide weather I will have to do chemotherapy treatment or surgery first , I built myself up with a lot of emotions crying , sharing with family and friends anger and disbelief , then no it’s not real . I then got to the place because I had too ,that okay I will be unwell for a few months , I will lose my hair but looked for nice scarfs and decided I would wear a wig , I would have reconstruction and beat Cancer .
To now my oncologist said unfortunately it has spread to the lymph nodes and bones , multiple bones and is stage 4 , incurable .
wow , what the hell am I meant to do with that shocking news !
Absolutely devastating,my life feels like it’s changed over night , I’ve changed .
I am now on letrazole for a month now , Palbociclib for 8 days and denusaub injection .
I have 6 weeks off work to see how and if I have side effects from the treatment .
Other than achy joints legs and arms mainly , slight headache all okay .
But feel flat and don’t know what to do with myself , feel like I’m waiting for bad side effects and should be grateful I havnt .
Do I give myself more time ?Do I go back to work ?
How do I live my normal life when everything has changed?
My diagnose is invisible but there , its a weird and scary time .
I have been reading everyone’s messages on here and wow it’s a great place to get advice and support, and finally decided to write on here too .
Thankyou to anyone that has took the time to read this and hope I can get some advice from others and feel free to ask me as well as it’s important to be able to express your feelings and emotions and share ways to get through this rubbish process /diagnosis.
I would have sworn normally about what I call it , but don’t want to be chucked off the forum .
Best Wishes
Hi welcome to the club that no one wants to be in. Everyone is different and I'm only 3 cycles of drugs into this journey but I would say everything you are feeling is totally valid and normal. You don't have to make decisions on anything at the moment. Sometimes you just have to sit in the s*** and allow yourself to be sad, frustrated and any number of other emotions that will come and go. But I would say on those very down days go for a walk, get outside if you can as a minimum. On the up days do as much as you can..meet your mates, go out.
It's not easy but I've found with time the very annoying phrase of new normal becomes your life and things will start to make sense again. I've just started working again because my brain was rotting but there were a good couple of months that no way could i concentrate on anything.
For me exercise is they key it helps short and long term mentally emotionally and of course physically. There is lots of hope out there so try and keep hold of that. Feel free to message, no one has all the answers but there's lots of us around :)
Hi , thanks for replying.
sorry your going through this as well , your right the new normal is hard to get use to .
I feel that I will finish my 1st cycle and then go back to work as I agree about the brain rot , I like to be busy and to be fair I’m a therapist so I’m not doing anything physical.
Wish you all the best !
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