Hi ,
I was diagnosed before Xmas to have breast cancer and that was hard enough to listen too and take in , then after a long wait for my ct and mri for the mdt team to decide weather I will have to do chemotherapy treatment or surgery first , I built myself up with a lot of emotions crying , sharing with family and friends anger and disbelief , then no it’s not real . I then got to the place because I had too ,that okay I will be unwell for a few months , I will lose my hair but looked for nice scarfs and decided I would wear a wig , I would have reconstruction and beat Cancer .
To now my oncologist said unfortunately it has spread to the lymph nodes and bones , multiple bones and is stage 4 , incurable .
wow , what the hell am I meant to do with that shocking news !
Absolutely devastating,my life feels like it’s changed over night , I’ve changed .
I am now on letrazole for a month now , Palbociclib for 8 days and denusaub injection .
I have 6 weeks off work to see how and if I have side effects from the treatment .
Other than achy joints legs and arms mainly , slight headache all okay .
But feel flat and don’t know what to do with myself , feel like I’m waiting for bad side effects and should be grateful I havnt .
Do I give myself more time ?Do I go back to work ?
How do I live my normal life when everything has changed?
My diagnose is invisible but there , its a weird and scary time .
I have been reading everyone’s messages on here and wow it’s a great place to get advice and support, and finally decided to write on here too .
Thankyou to anyone that has took the time to read this and hope I can get some advice from others and feel free to ask me as well as it’s important to be able to express your feelings and emotions and share ways to get through this rubbish process /diagnosis.
I would have sworn normally about what I call it , but don’t want to be chucked off the forum .
Best Wishes
Hi Miah, I am sorry that you had to join this forum. It is really hard to get your head around isn't it? I had breast cancer in 2013 and had op, chemo, radiotherapy and tamoxifen for five years. Got diagnosed with secondary breast cancer in 2024. I also have extensive bone mets with my spine being the worst and painful. In the beginning I thought my world had ended we had planned to move back to South Africa this year and had already bought our house over there. Well that plan has changed but I have realised that my life is not over and I have to make new plans. I gave up work as I can't sit down for long periods of time. I find that walking my dogs every day really helps and keeping active seems to relieve the pain somehow. Last year my husband and I went to Portugal on holiday which I thought I would never do again. It was so nice to leave the cancer behind for a while. We have just got back from Iceland which was amazing. So yes it is very hard, especially in the beginning but it does get easier. I know about swearing but they take it out 
. Sending you the biggest of hugs.
Lee x
