I too am on Kadcyla and had my 11th treatment yesterday. I have the usual side effects of tiredness and muscle/bone pain which are controlled with paracetamol and ibuprofen.i did have problems with my nails lifting at the beginning but now it seems to be getting better.
I was pn Herceptin and Perjeta previously but stopped working and I went on to Kadcyla and at the last scan after 6 sessons there was no furrher progrrssion of the disease. Long may it continue! I hope you continue to do well and carry on fighting this 'INCONVENIENCE'!!
Sending you all good wishes and lots of positivity!
thank you so much for your reply it’s good to hear you’re doing well on kadcyla.
I had an mri scan recently and it showed very positive results but I also have neuropathy in my fingers and toes I had some in my toes from the previous chemotherapy but sadly it’s getting worse, have you had neuropathy did it get any better?
i had treatment number 4 yesterday and the nurse was concerned about the worsening neuropathy contacted my oncologist who said he would reduce my next treatment in the hope it will help.
Like you I find kadcyla tolerable with some side effects very much like yours so I’m keen to be able to stay on it for as long as I can.
Thank you again for your reply it’s good to be able to chat with somebody having the same treatment.
It was good to hear from you and I hope you are not feeling too bad after yourr treatment. I finf that for2 to 4 days after treatment I sleep about 16 hours a day and the paracwtamol helps with the joint, bone pain etc.
Like you I had quite severe neuropathy in my feet by the time I had had round 4. The pain was such that i had to sleep with my feet out of bed as anything at all that touched them nearly drove me mad! I am delighted to say that I found soaking my feet in Himalayan pink salt solution daily helped tremendously and by round 7 I had just the lack of feeling but no pain, I even managed to wear heels! Anything is worth trying as it is such a miserable feeling. I also listen to healing sounds and practise visualisation, at least it gives me a sense of doing something that may help and if it doesnt help it certainly wont hurt!
I hope you have a good weekend, and although it is sometimes difficult during the dark times, we are strong women and we do know how to do positivity!
thankyou so much for your reply I will definitely try the salt foot bath.
I’ve recovered from last weeks treatment felt a lot better by Monday I also sleep a lot.
I’ll let you know if the foot baths work for me ...I hope so.
You are quite right we do know how to keep positive and enjoy the good times in between treatments I’m doing that now lots of plans for the next couple of weeks.
I’m so sorry that you’ve been through so much at such a young age if you read my profile you can see that I was a good bit older than you when in 2005 cancer came unwelcome into my life ....however I’m still here.
Kadcyla seems to be a doable drug with less side effects than the older chemos as we know they all have some side effects.
I find I sleep quite a bit for about two days after treatment I feel a little nauseous but not enough to take anti nausea tablets and that only lasts again for a couple of days,I do have neuropathy so the dose is going to be reduced....unfortunately I already had some neuropathy from past treatments so I suppose it was inevitable.
I haven’t lost my hair and I understand there is only a very small chance of losing hair on kadcyla so that’s a bonus!
I’ve just had treatment 4 but Nuala is ahead of me and has already been a great help with advise.
I have my fingers firmly crossed that this drug will work well for you button as it seems to for me...my latest scan results were good.
It was really good to hear from you, albeit in the club that no one wants to join! I jave found Kadcyla very bearable after having had a total pf 14 sessions of the dread docetaxel combined with Herceptin, Perjeta and denusomab. I do get tired (I am 74) and have some muscle and joint pain which is sorted by paracetamol and ibuprofen but after 3 or 4 days it gets better and when i feel tired I wrap up in a blanket and rest and count my blessings. I had some neuropathy from previous treatment 5 years ago and did find that it became worse after the first 3 sessions of Kadcyla but this was helped tremendously by a 20 minute footbath with Himalayan pink and now I have no trouble at all.
I had a scan in July after 6 sessions which showed considerable shrinkage of the stomach nodes and no further spread of the disease. Hallelujah! I have a further scan a week on Monday so I am hoping to be stable still but whatever I will deal with it.
I hope your treatment went well todayand you have few side effects. Please keep in touch and i send you best wishes, keep up the positivity and we WILL beat this and enjoy life!
So glad to hear that, Julie, I will keep praying for all the positives for you. I took the liberty of rrading your profile and you are such a brave, courageous lady and an inspiration. Please keep in touch whenever you want to or feel the need to rant or scream!
