Hi all
i have now had 3 rounds of EC chemotherapy on a fortnightly basis. Each time I lose a week where I can barely eat or get out of bed and sleep constantly.I’m lucky that hubby is wfh and kids are older but I didn’t realise how weak I would be. I have 1 EC left and then I go onto T (Docetaxel) - just wondered how others had found this in comparison?
thanks in advance and sending positivity to all x
Hi Clarabel1968,
I, like yourself did 3 ECs (though every three weeks rather than two) which I reacted to severely each time. Bless you. I found every three weeks enough so you have done amazing to get through that. I then did one Docetaxel and it didn’t agree with me so I have now been put onto weekly Paclitaxel (Taxol) which I have found so much more bearable. It is a hassle having to put up with the discomfort (I use a cold cap too) of weekly sessions, however, it is making it possible for me so far. I just wanted to offer you hope that there are alternatives if you are finding things to be too much. I told my consultant how bad things were and he gave me various options. Good luck with your treatment.
Sending you positive vibes and hugs,
Bekky
x
Thanks Bekky - sorry to hear you found it tough too. I’ve just found out that I might be having Paclitaxel instead.
How did you get on with the cold cap. I just resigned myself to losing my hair.
Hope your treatment is going ok.
Hugs and positive vibes back x
Hi hun,
Right, can I just say that I was so worried about going on to yet another drug after having really bad experiences with everything so far. I have literally been ticking off pretty much every symptom in the book!!
I want to offer you reassurance that since my first Paclitaxel last week I have not felt up or down! I felt a bit tired with slight sickness but the meds stopped that completely. I have been able to play with my son again and feel I have a bit more of a semblance of a life again! I am getting it weekly so it could be down to the fact that on a low dose? How often have you been told you will need it? I was told that this dose of this drug is given to ladies in their 80s so I was hopeful it would be more bearable? I know everyone reacts differently but I was so worried having been in and out of A & E on the other drugs.
I can honestly tell you that I feel more like me again. I am due my next on Thursday so I will report back to you how I feel then in case it has an accumulative effect. I was worried they would stop my chemo all together as this was discussed due to my reaction to it but I am more hopeful now that I can physically and mentally see this to the end before I start my radiotherapy next.
I am continuing to use the cold cap but will see if I last the next 5?!
I hope this helps you? Let me know if you have any more questions. Warm hugs.
Bekky
x
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