11cm of high grade DCIS

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Hi 

Ive seen the consultant today and the situation is much worse than I had expected.

 I have 11cm of high grade dcis in throughout my right breast, basically the whole of my 32 A cup breast is affected and I have no alternative but to have a mastectomy.

The consultant said that there is a high probability that there are pockets of invasive carcinoma within the breast.

Has anyone had a similar experience?

Susie

  • Hi Ricecrispie welcome to the forum and I am so very sorry to hear your news. I imagine that you will be somewhat shocked and full of questions and no wonder. They wont be able to confirm that probability until the breast has been examined and biopsies sent to pathology for testing.

    The next few days will most likely feel so surreal for you and you have come to the right place for support from others who have had the same or similar situations to your own and they will be along soon to chat and maybe answer any questions that you have.

    Thinking of you and sending some huge big hugs your way meantime.xx

  • FormerMember
    FormerMember

    No pearls of wisdom just sending hugs Susie. Debs 

  • Hi,

    Sorry to hear your news.  I had 5cm of which 4.5cm was invasive ductal cancer and the 0.5 was DCIS, also in a 32A cup.  I had to have a mastectomy due to my small breast size.  My Consultant said to me its often the case that there is mixed cancer and DCIS when they operate.  

    Sending good wishes, keep us updated with your results. 

  • Thanks Debs,

    I now feel like I’m in a parallel universe and this is happening to someone else not me. The tears don’t seem to want to stop today and the 11cm just goes round and round in my head. 
    Sx

  • Thanks for your good wishes x

  • Hi Gail,

    Thanks for your kind words. So tired but can’t sleep.

    Sx

  • FormerMember
    FormerMember

    Hi, so sorry you are going through this, I had a large lump DCIS 11 years ago and had a masectomy. I had reconstruction 6 years ago. I am having another masectomy on thursday as I now have lobular cancer My advise would be to get as healthy as you possibly can.  Give up alcohol, exersice , eat really well, quit sugar. I did all this for a couple of years but didnt stick to it. You will beat this, I know its hard loosing such an important part of you but I kept telling myself the cancer was being taken away and that was what mattered in the end. Now I wish I had had a double.  Stay strong. Sending Hugs. Anna 

  • Hi peterawake

    Thanks for responding, I’m really struggling with all this. Did you have a reconstruction?

    Susie

  • Hi Anna

    Thanks for your kind words. What type of reconstruction did you have?

    They’ve given me some time to think things through this week before I see the reconstruction nurse to discuss options next week and then back to the consultant to discuss things further early the following week.

    I keep waking up thinking it’s all a bad dream. I am really struggling.

    I am quite fit and healthy generally, walk 2 dogs, ride my horse etc, I do eat well so I’m halfway there already.

    Thanks again.

    Susie

  • FormerMember
    FormerMember in reply to Ricecrispie

    Yes but not straight away, I waited 6 years. I waited until my head and body were in the right place. Have you spoken to the breast care nurses? They offer amazing support and advice. I know its very hard to come to terms with this, I still struggle. I try to think of it like this , what if this was a different body part, and removing that body part would save my life, I would not hesitate. Its a body part and it can be replaced, survival trumps all those other feelings for me. I hope you can find some way to come to terms with it, it will take time but you will get there. I joined a reconstrution support group at the hospital which helped. Hopefully these will be running again soon. Sorry I had an implant, which is great. I did not have enough body fat for DIEP. Lots of hugs,