Hello
I’m new to this group.
I have been diagnosed DCIS same breast second time after 15yrs my consultant said I must now have a mastectomy I’m in shock very anxious can’t stop crying and feel I’m in a black hole it’s all so fast I’m due to have my op 29th April.
my next follow up appointment is on Tuesday 31st March to make a decision on what to do next . I immediately asked for an implant but I’m so unsure maybe reading so much . Could anyone give me some information on your experience.
I am reluctant at the moment to go with a reconstruction (Diep ) as I have had vulva cancer and a vulsectomy in 2009 and still have ongoing problems in that area . So having more stitches and scarring makes me more worried.i would be so grateful for your experience regarding both procedures. Even not having anything at all and going flat
Thank you
There are so many decisions to make regarding treatment it is hard to decide what to do for the best.But the one thing I was absolutely sure of when I got my diagnosis was do the Mastectomy I don't care how it looks I just want the cancer gone .So I am happy to be flat on one side most of the time and am getting a prosthesis soon to wear when I need to dress up and look smarter because clothes do hang a bit funny without.It is a very personal decision of course but I'm getting used to how I look now and just so grateful to be alive.
I was the same as you, I just wanted the cancer gone too! At the time, I too had to make the decision whether to have reconstructive surgery at the same time as mastectomy. I was 95% certain I just wanted the mastectomy and after speaking to several people at the time I was 100%.
I am now 2 months post surgery and pleased that I made that decision. I’ve had my prosthesis for a couple of weeks and getting used to it as also getting used to being flat.
Like you said it is everyone’s personal choice but I know I made the right one for me.
Good luck Lookey8 for what ever you decide.
I had intermediate dcis in 2004. LD reconstruction with implant. No problems for 21 years so that choice can be very successful. I had recurrence but invasive dictator last year 2025 in same breast mastectomy envelope. Lumpectomy and capsulectomy plus implant replacement. So Ive still got a breast. However I feel like I have never really gone through a mastectomy even though I really did in 2004 and 2025 and I hopefully never will. There are a lot of positives in having a breast replaced, however it is done but there is also always a slight and only slight that eventually mastectomy is the final option.
So what im saying I guess is at some point in the far distant future mastectomy is quite possibly inevitable. Feel liked Ive ducked it twice but have no regrets!
Good luck with your decision xx
Thank you all for taking the time to reply.
I’m still unsure , but I spoke to a friend of a friend today who had a mastectomy a while ago and she apparently is ok with her decision not to do anything and is moving on .
susz that’s very reassuring I’m so glad you came through again. As you can probably see by the time of my reply I’m thinking over and over .
one minute I’m sure that I will just go with the mastectomy next I’m going with implant .
owl you are absolutely right you just want it gone .louloub so glad you made the decision that’s right for you.
Thank you all again .
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