Bit of help please

Hi Sara02, I didn't have a mastectomy but I couldn't read your message and not respond to you. I can't imagine what you are going through but I know there will be people here who will have been in a similar position and can share their stories.

All I can advise is please remember your breast care nurse is always there if you need to talk to someone. My nurse is so helpful and referred me to a local online group to deal with everything i'm feeling now post treatment. I would encourage you to talk to your nurse to see if there is anything available for you.

Take care, Jem x

Hi Sara, it sounds like you are struggling, I am so sorry. Its very hard as our friends and family cannot fully understand. I have joined flat friends UK on facebook which has helped me,. I am yet to start chemo and feel very up and down about it but talking to other people who are going through it or have been through it helps. Do you have a good BCN team? If you want to join FF let me know and I can message you a link. Sending big hugs. Anna x

Hi Sara02, I had my right breast removed in August of 2019 and opted to have an immediate reconstruction, which I don’t regret.  Why not speak with your breast care nurse and see if a reconstruction would help you to get over this dreadful feeling you are experiencing?  They can help and I know they can do a reconstruction after surgery has been done previously.  I was glad I did this, so would encourage you to speak of this solution and I wish you all the best.

Hi. I had mastectomy without reconstruction as I had to had chemo follow with radiotherapy... I have size E boob and I feel awfully with one breast. In my case it's bothers me that it's not even,the same each side. I feel weird and uncomfortable with the fake boob so I usually don't wear that.I find difficult to find clothes that suits me and  doesn't show . . I am upset that I wasn't heard when I said I want both of my breast take out as now I am left to deal with it each day. I am told I can have reconstruction or have other breast removed which brings me some comfort but still I think it's not fair .

Sparklers85, I would speak with your breast care nurse about the reconstruction, go to a group at your hospital and speak with someone face to face who has gone through this procedure, as I did beforehand and see how you could look post surgery through a MacMillan Centre at the hospital if you can, as it helped me to make that decision well informed.  Good luck, but do speak to someone about this who is well informed.  Good luck both you and Sara.