Scared it’s back

FormerMember
FormerMember
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hi haven’t been on here for a while started a new job which is very demanding. I finished all of my treatment Feb 2018, had 3xFEC 3x Docetaxol followed by lumpectomy and reconstruction and then 29 radio. Had been taking Tamoxifen for 18 months and very recently changed to Letrozole. 

For a few weeks I have felt very bloated and my appetite is gradually diminishing, I am not losing weight in fact feel like i’m gaining, I initially put it down to the menopause and the fact my job means I am sitting down all day. I have this morning made an appointment with my GP as I have woken up feeling like i’ve Just eaten a three course meal, but cannot get me in until Oct 1st. I am terrified the cancer has come back,  I lost two friends to Ovarian cancer and I know their symptoms included the bloating and loss of appetite. I had a hysterectomy 10 years ago because of cervical cancer  but my ovaries where left behind. I have so many horrible thoughts going around in my head at the moment i’m just so scared. 

  • Hello Jojo,

    I don't have an answer to your question but answering you will put you back at the top of the list because someone may have had similar symptoms and can offer you some reassurance.  I had triple negative cancer so don't take hormone inhibitors but I'm wondering as you have changed to the Letrozole recently if this might be one of it's side effects. I know lots of contributors here mention they take it so someone might have had something similar. Can you track the bloating back to the change of drugs perhaps? For the time being, however scary the idea is, try not to worry ( I know....who am I kidding?). I remember going to my first mammogram convinced the cancer was back because I could feel a lump which ironically I hadn't even had when a mammogram found the original tumours. The accompanying ultrasound revealed scar tissue but I had been silently terrified for weeks.

    It seems terrible that you have to wait until Oct 1st for an appointment with the GP. Is there no other facility for more urgent referrals....BCN,  ?breast clinic , ?oncologist? I know you're worried it's a different cancer but given your history surely someone would take your fears seriously?

    I do hope you get some answers soon and that this turns out to have a simple explanation which can be sorted quickly.

    Take care. Love Karen

    1. I
  • , so sorry you have this worry. Agree with , you need to be seen sooner than Oct 1st. You cannot carry that anxiety for so long when you are a cancer survivor., not acceptable. You could try your onco unit, or get back to your GP. Go in person if nec, try a few tears, ask fir a same day appt. Practices are supposed to have a list of cancer survivors, especially recent ones, and should give them some sort of priority over the common run of coughs and colds etc. I know they are snowed under with work, but there should be some sort of system. You have to make a nuisance if yourself to get anywhere these days!

    Good luck, and big hugs xxxxx

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • FormerMember
    FormerMember

    Hi , what a horrible amount of stress to go through, I really feel for you.

    I appreciate different doctors surgeries might have different policies, but at mine, they hold a number of appointments clear every day for emergencies. If I need an appointment, I phone up at 8.30am and I can usually get one for the same day. 

    It might be worth speaking to your surgery and asking if they have a similar system. Considering what you've been through, I can't see them forcing you to wait until the 1st Oct.

    Keeping my fingers crossed for you xx

  • FormerMember
    FormerMember

    Thank you to everyone who took the time to reply, went to doctors yesterday, told her my symptoms, first thing she asked was any historical ovarian cancer in your family I sort of lost it a bit from then. Told me to make an appointment for a blood test, gave me 3 poo bottles and told me off for my weight gain, also said blood pressure was far too high , asked what she expected after that bombshell, they expected me to wait 3 weeks for blood test , so this morning I called my onc secretary, within half an hour I was invited for a fast track blood test and said the results will be sent to my gp in the next 24 hours , even though my oncologist doesn’t treat ovarian cancer he was brilliant getting me sorted, I just couldn’t wait around for another 3 weeks with this hanging over me , so hopefully all will become clear nover the next couple of days xxxxx 

  • Oh dear, what an ordeal the doctors sounded, and well done for arranging it yourself. I know it won't happen, but I hope that you aren't too stressed waiting:' xx

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,