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Hi everyone, I've been recommended this forum because I feel very lonely at the moment, my Dad is currently in palative care at home and in his final weeks, after fighting a glioblastoma diagnosis the past year and half. My dad is my best friend...
I had two seizures sept '23 which lead to my diagnosis of grade 2 oligodendroglioma, and since then have been on a small dose of levetiracetam. Post op I had no sign of seizure activity and was focusing on physical rehab. Out of the blue (like everything...
Hi, I have recently been diagnosed with grade 4 gliomas astrocytoma. All very shocking and things have happened very quickly. I had two tumours and one and a half have been removed. I start radiotherapy and chemotherapy next week. My cycle is 6 weeks...
having a brain scan a MRI with contrast, will i be ok to drive home
I still find it sad that blogs and stories are just one or two messages and then they stop. It’d be nice to know how people have gotten on or how they feel/cope. I understand people can think it’s pointless but it can help to vent and remember your journey...
Hi all, It's been so helpful to read everyone's experiences of brain tumours and know that I'm not alone in this. I'm not sure if this topic has been talked about before in this forum, but I'm struggling with a bit of an identity crisis, along with...
Sunday (24/3) is exactly 12 months since surgery for an adenocarcinoma which had grown in my occipital lobe, which for those that don't know is the part of the brain that processes visual information. My primary was bowel cancer and the NHS has been taking...
So Friday 15th, After having an MRI on the 14th, my Wife and I went to get the results of my scan. This was an MRi to see whether or not the 6 weeks of treatment , being Radiotherapy and chemotherapy have made any impact on my tumour. I'm delighted...
Hi, I’m having a 4th ventricular ependymoma removed most likely within the next month or so… I am so so scared. I know that it’s normal to be scared and I’m sure everyone having any form of brain surgery is, but I’m worried that I’m somehow just too...
Hi everyone. I’m scared, I am 33 years old and recently been unwell. When I was taken into hospital they did a CT scan and found a lesion on my temporal lobe. They first thought I had a mini stroke so admitted me to the ward. the neurology consultant...
