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On the 21st December 2023 my dad was diagnosed with a brain tumour at the age of 61, we later found out after the Christmas rush that it was grade 4 and ‘aggressive’. My dad was operated on in the 3rd week of January and about a month ago finished his...
Hi there, my mum started acting strangely a month ago - very quiet, reduced concentration, not wanting to eat, text messages not making sense. She was then found having collapsed and has been in hospital for 10 days with an initial diagnosis of brain...
Im waiting on a date for my radio the a 'break' then chemo. The only IV form is vincristine from PCV (a combination of the chemotherapy drugs procarbazine, lomustine (CCNU) and vincristine.) It mentions hair loss so I know this is possible? Has anyone...
I am currently on day 5 of treatment cycle 2. I am on actriple dosage of chemotherapy. Temozolamade 400mg. 5days on, 23 days break, per cycle. 6 to 12 cycles depending on how scans look after the 3rd cycle. Anybody else having the same treatment?...
Hello everyone, Approx 5 years ago I was on this forum looking for hope for my mother who was aged 49 diagnosed with GBM- grade 4. The news was devastating, the fear, the anxiety, the anger… it was the most overwhelming time of our lives. I wanted answers...
Hiya- After losing my hearing on right side and experiencing balance issues and sickness and headaches I have now had an MRI result saying I have an auditory schwarnoma. I was told by phone from 2 different Doctors (both not realising the other one had...
Hi New to this group, and am really struggling. My husband suffered a large seizure in December , CT and MRI scans followed, and was thought to have meningitis or encephalitis. On 20 Feb he was told he had a grade 4 glioblastoma. The neurologist...
Hi. My partner got diagnosed in June with oligodendroglioma. I seem to be struggling more than he is. I thought this could be a good place to talk!
I was diagnosed in November 23 with lung cancer that spread to my brain. Had my first surgery in February, then another in March to wash out an infection where they removed the bone. Was due to hav lung surgery in March where they told me my disease had...
Hello all. After finishing my 6 weeks initial treatment plan and having a 4 week break, I'm getting closer to having my next MRI. Followed by an appointment with my consultant to discuss results. This is booked in for the 14th/15th March, so not long...
