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Hi all, I'm a mum of 5. My youngest is 11 years old, he has sensory processing dysfunction and just diagnosed with dyspraxia. His motor skills are affected greatly, can't ride a bike/ balance/ climb ect. We had an MRI due to paediatrician saying he...
Me and my family are doing the mighty hike in the lakes on the 14th of June! This charity/community has done and continues to do so much for me and my family and I can't wait to give back we have already done a fundraiser coffee morning which raised over...
Well my immunity being low with chemo has finally been hit by a virus. Shingles. I had to cancel my original op where I had a blocked kidney (now that’s pain). After the op I’ve been fortunate with all the germs and not had much of anything until this...
Bit of back ground.. my wife was diagnosed with stage 4 glioblastoma in December after a tumor was removed on her left frontal lobe. She is doing really well pretty much running the house again and I'm back at work. She smashed the first round of intensive...
Hi all, I'm very new here. I came home from working nights at the start of March and my husband was on the floor having a seizure. My children found him. We were taken to ED for a CT just expecting that he’d had a TIA but they found a mass on his...
Hi all, F25 here, my 5.5cm tumour was found following a sudden awful headache on 19.04. Have been to see the neuro-oncologist and an awake craniotomy will be scheduled hopefully in the next month to remove it. They think the reason it has been discovered...
It's me again,. I do more reading than posting tbh . My feelings change so much week 2 week and day 2 day. My Hubby is doing well and gone past his due date of 18 months/2years. Glioblastoma stage 4 right side lobe It's hard every mri that is due. The...
So I’m guessing some of you will know about Methylated and Unmethylated! My question is (and yes I will ask my oncologist nurse tomorrow about my husbands diagnosis). if it’s Unmethylated and chemo won’t react as well as someone who is methylated...
From the beginning, before it was removed, I was told verbally and dictated by letter of having Glioblastoma stage 4. This was by both my neurologist and cancer nurse. Tomorrow morning at 10am I have an appointment at the hospital, with my husband....
Hi all, newby to the site, I've recently been diagnosed with a low grade brain tumour which is around 5cm in size behind my right eye, had been having symptoms for a while, racing heartbeat that I could hear in my head, dizziness, strange smell occasionally...
