Afternoon, first post for me. Feeling absolutely devastated. I had a craniotomy on the 8/4/25, after a brain tumour was found in my left temporal lobe.

I did this in July 2024. Today, I am coming to the end of treatment. I am well, happy, working full time and doing my sports and hobbies. The outcome may not be as bad as you think! Good luck. 

You don’t always have to be strong - I find the day before results is the worst of all. Do whatever you have to to get through it, even if it’s staying in bed all day ️ I’m glad your husband is going with you tomorrow.

i was diagnosed with the same thing in the same place three years ago, though it was later termed an astrocytoma grade 4. After the craniotomy, chemo and radio, I’m doing well and enjoying my life.

Just get to that appointment, and take it from there, and I’m sending you love and a big squeeze of the hand - you can do this xxx

You certainly don't have yo be strong all the time. You will go through so may emotions and they are all okay.

I was diagnosed with stage 4 glioblastoma about 7 weeks ago. Total bolt from the blue. Probably took me last 6 or 7 weeks to somewhat come to terms with it so give it time. 

Most days I'm strong and positive, I find it hard telling people (friends and family). That means that few people know.

My friends have been an amazing support, others find it really difficult.

I understand how difficult it can be to tell your daughter, is she an adult? If so you will need her support, I know it's difficult and Macmillan can advise.

My radiotherapy consultant gave me advice in what to tell one of my children (the inquisitive one). That was helpful. My  children are teens and I need to feed them information as I go, it's too much right away.

Sending hugs. 

Thank you Tashie for your reply. Unfortunately, the prognosis was correct....stage 4 Glioblastoma brain cancer. I start radiotherapy and chemotherapy next week  X

Thank you Leelu for your kind reply...Unfortunately, the prognosis was correct....stage 4 Glioblastoma brain cancer. I start radiotherapy and chemotherapy next week  X

Thank you Living Life for your reply. Unfortunately, the prognosis was correct....stage 4 Glioblastoma brain cancer. I start radiotherapy and chemotherapy next week  X

Thank you to all your replies  Unfortunately, the prognosis was correct....stage 4 Glioblastoma brain cancer. I start radiotherapy and chemotherapy next week  X

I will fight as hard as I can...  x

Not good news, but you now have a diagnosis and treatment plan. I had no problem with the chemoradio, apart from fitting work round the daily appointments. I lost a  very small patch of hair.  Hope  allgoes well

Odette, I'm also stage 4 Glioblastoma, due to where it is they can't operate so I'm just chemo and radiotherapy to reduce and manage. I only started this week on my 6 week treatment plan.

I totally get how this news hits. It's so hard and so unfair and a bitter pill that no one should have to swallow.  If you ever need to chat along the journey I'm here. 

You have a lot to process, it's okay to be angry, to cry, whatever. It's also okay to take back your power. For me that's just my friendships, my food choices, the things I can fit around my tiredness and the control I can have.

Living Life I admire you so much! ️