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Im 30 years old and I recently found out that I have a grade 2 astrocytoma located in my right frontal lobe. I lost my mother to a glioblastoma 5 years ago. She had 3 brain surgeries and was taking clinical trial drugs just to prolong her life. She lived...
I'm now day 21 after radiotherapy has ended. Hospital says, 2 to 3 weeks would be peak tiredness. I feel it isn't lifting and I'm in the depths and not coming out. I guess I'm maybe looking for reassurance that it passes if anyone has that experience...
Hi all, Thank you for all the comments on my previous post - it’s greatly appreciated! I’m half way through my radiotherapy and first round of chemo and luckily I’ve been blessed with hardly any side effects other than a bit of nausea and getting...
Hiya! I have a recent diagnosis of a a large right insular lobe Intrinsic tumour with areas of patchy aggressiveness. Trying to get my debulking surgery booked in for as soon as possible as the neurosurgeon is confident they can remove most of it. Feeling...
I am new to all this and desperate to hear from others who know what this is like. My husband who is 54 has just been diagnosed with a Grade 4 Brain Tumour. It has been a total shock as he has been until now fit and healthy. His only symptom has been...
To say we are devastated is an understatement. From what looked like nothing, but we visited A and E anyway, went from being a mild stroke to a brain tumour in a week. My hubby is 58, fit and healthy, never had a hospital appointment, let alone having...
Hi! My husbands brain tumor diagnosis was in December 2018 and his first surgery to remove stage 2 Oligodendrogliomas was February of 2019 followed up by 6 weeks of radiation and then 6 months of oral chemo. Fast forward to December of 2022 diagnosed...
I’m starting both radiotherapy and chemotherapy (temozlomide tablets) in just over a week and I’m feeling more and more nervous about the side effects of both. I’m having this done 2 months after I had brain surgery to remove my astrocytoma which has...
Hello all, My husband is due to start his final round of PCV soon. The last 3 cycles he has had he has broke out in really itchy hives and had a reaction to the drugs (we dont know which of the 3 drugs it is). The doctors usually take him off of procarbazine...
Hey all I’m 26 and have just been diagnosed with astrocytoma, waiting to start radiotherapy and chemo. I’ve told all my friends and family now, have reassured them and told them that I’m still me and I don’t want anything to change. I’m a pretty sociable...
