So I’m guessing some of you will know about Methylated and Unmethylated!
My question is (and yes I will ask my oncologist nurse tomorrow about my husbands diagnosis).
if it’s Unmethylated and chemo won’t react as well as someone who is methylated why do they continue with treatment? My guess is keep trying as everybody is different and responds different but also statistics show that that’s not always the case (maybe I read too much!)
Anyway I will ask tomorrow see what our nurse tells us.
thank you for reading even if it doesn’t make sense ( I’m all over the place)
HI jacjac74
That's a good question and one I struggled to get my head round when I was supporting G with his GBM journey.
I found this article that focuses on Glioblastoma but does explain the methylate/unmethylated bit within it
Glioblastoma Multiforme (GBM) | Treatment and Prognosis | Brain Tumour Research
It's also covered in this article too Biomarker tests | The Brain Tumour Charity
At the end of the day they best people to ask are your husband's medical team as they will be able explain his situation with better clarity.
I hope the appointment goes smoothly
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Thank you 
️
I’m sure I will get answers tomorrow, just really not sure what’s what right now, my heads all over the place!
that's totally understandable. Be gentle with yourself. It's all such a lot to process.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Hello Wee me
when your darling husband was diagnosed, was he put into palliative care straight away, unfortunately they cannot remove the tumour with R as its bi frontal lateral,
i’m just trying to get my head around all this I know everyone’s different, R is doing ok walks with the dog and my son, walks with a stick due to having seizures but he’s seizures have calmed as his medication has been upped, I am taking day by day, they have also got a hospice nurse in but she comes every 3 weeks or when needed is this what your husband had? How did you cope? I’m looking into doing yoga and Art, I love crafting so I will most probably do that whilst I care for my husband.
thank you for reading 
