Hi all,
I'm a mum of 5. My youngest is 11 years old, he has sensory processing dysfunction and just diagnosed with dyspraxia. His motor skills are affected greatly, can't ride a bike/ balance/ climb ect. We had an MRI due to paediatrician saying he had pendulous reflexes and wanted to check brain structure. Within a day of the mri we have had a barrage of appointments thrown at us beginning tomorrow. We have been told very little, only that there is pressure on the brain from.fluid that is chronic. Tomorrow he has another mri, seeing optometrist consultant and neurosurgeon consultant at children's hospital. I'm petrified this is linked to a brain tumour.
I'm probably catastrophising spectacularly, however the speed the nhs has moved at is like NOTHING I have seen or heard before.
My boy has no symptoms other than his motor skills mentioned above. Can it be a tumour with no major symptoms like headaches and sickness?
Thanks for reading
HI Sazbo82
a warm welcome to the group. So sorry to hear about all that's going on with your son. Scary times until you get some answers.
In my experience, the NHS doesn't hang about when it comes to concerns over children's health so please don't assume the worst here. If they are saying that its fluid that's causing pressure that's a whole different story to telling you there's a mass there. Please be led by what the team treating your son are telling you and steer clear of Dr Google. he's a scary dude.
Please try to take this journey one step at a time until you have been told all the facts. It's very easy to castastrophise and only natural to do so.
I supported my late husband through the 3 years of his stage 4 brain tumour journey. He was first diagnosed in Sept 2020 but right from the first CT scan/MRI scan we were told it was a tumour. In the space of 3 weeks he had been diagnosed, operated on and was home. It was a whirlwind three weeks but shows that even during Covid times back then that the NHS does move swiftly at times.
This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it and someone to hold your hand or offer a virtual hug. You're not alone. We've got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now though I'm sending you a huge virtual hug and lots of positive energy.
Love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
